[tri-med] Re: Heart defects....Gary and Elizabeth

My daughter Soleah had the same thing.  Her VSD was patched and they had to sew 
into the microscopic nerves that control the heart beat.  She came off of the 
vent okay but they kept the external wires in for two weeks to wait on the 
swelling, etc. to go down which is fairly common I think.  In Soleah's case,  
it did not help and she needed a permenent pacemaker placed.  She has had a 
pacemaker for 11 years with no complications other than needing to be replaced. 
 If this becomes an issue for you, I will give you more details.  In the mean 
time, I will be praying for a perfect recovery!  God Bless you both during this 
time, Nanci   
Gary Comparetto <garycomp@xxxxxxxxx> wrote:Hi Rose,
My wife Elizabeth and I have a baby boy, Stephen, who was born October 5, 2004
with T13 mosaic.

I am currently writing this e-mail from Children's Hospital in Washington DC
where Stephen just had surgery yesterday to repair his VSD - it was 14mm. The
surgery went very well - he's currently having a little difficulty with
irregular heart beat but they have a temporary external pace maker attached and
this is correcting the irregularity. He came off of the heart and lung machine
fine but developed the irregular heart beat afterwards. We are hopeful that
Stephen will recover completely - the next day or two are important for him as
they hope to take him off of the ventilator.

Elizabeth and I also wrestled with the decision to go through with the surgery
in the weeks prior to it. We decided to go through with it based on the
Doctor's recommendation and the fact that there were visible signs that the VSD
was effecting Stephen (his oral intake was decreasing and he was getting more
easily tired among other things).

We will pray that the Good Lord would provide you wisdom and discernment in
your decision regarding Becca.

Gary (and Elizabeth)
Phillipians 4:6-7



R Carey wrote:

> We are having a meeting with the doctors & cardiologist tomorrow afternoon
> @ 3:00. They are giving us the option to either bring Becca home and spend
> as much time with her as we can or they can try to repair her heart defects
> (PDA & VSD) which she may or may not make it through the surgery. Our
> meeting tomorrow will be discussing everything, trying to decide whats best
> for Becca. Please keep us in your prayers.
>
> ~Rose
> Building ___ooOOoo__ Rainbows
> www.trisomyonline.org
> Families Helping Families On-line


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Building ___ooOOoo__ Rainbows
www.trisomyonline.org
Families Helping Families On-line




Nanci - Wife to Mike, the ever patient one . . . Alicia, 20, nursing student . 
. . Shani, 14, homeschooler, biggest helper . . . Soleah, 10, Trisomy 
18M--always teaching me . . . Corey, 2, my boy-wonder!


Romans 5:3  . . . but we also glory in tribulations, knowing that tribulation 
produces perserverance; and perserverance, character; and character, hope.

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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