[tri-med] Re: Hearing Loss - Katie

Thanks-that makes sense and I"ve always told his doctor that I don't think
he metabolizes like everyone else....so it makes even more sense. :)
Katie


On 1/25/08 11:40 AM, "Fawna Lockwood" <fawna33@xxxxxxxxxxxxxx> wrote:

>> I have also heard of many trier kids having issues with chloral hydrate and
>> in other countries it is actually not legal to use because of the breathing
>> issues associated with it. I don't know a lot about it, but know that my
>> mommy intuition tell me to stay away from it...Anyway, hospitals love to
> use
>> it in the US. Kids are suppose to wake up quickly from it but Mitchell
> never
>> did...it always took him a long time and then he'd have issues breathing.
> He
>> also never fell asleep as fast as they said he was suppose to so then
> they'd
>> give him more which caused more issues in the end.
> 
> According to Lilley Pharmaceuticals (in their report on adverse post trial
> reactions to Strattera) this kind of paradoxical reaction would most likely
> be because Mitchell is 'a poor metabolizer'. Which means that it wouldn't
> take effect initially as soon as expected, and also that it wouldn't get out
> of his system as soon as expected.  So giving him more only makes matters
> worse when he finally starts to metabolize the drug. Where you can REALLY
> fall
> into trouble with this is on long term treatment with a drug that has a
> sedative
> property, because you're giving the next doses before the previous ones have
> metabolized, so the drug level in the body creeps higher and higher until
> your
> beyond a therapeutic level. Unfortunately this seems to be a pretty common
> problem
> in chromosomally damaged individuals. (My observation, not theirs.)
> 
> Fawna, Research coordinator TRIS Project, mom
> to Thom & Rhonda, Lara, & Philina 25yrs (PT6p
> & Moya Moya Syndrome), Escondido, CA USA
> http://home.mindspring.com/~fawna33/
> 
> 
> 
> 
> 
>  Now I do trust his dr....but I also have my own
> opinions and make them known if I feel I need to. :)
> Good luck. I know with Mitchell's hearing aids--I myself can hear the
> buzzing, so I wouldn't be too concerned about it. And if you are really
> worried about it--just change the batteries every couple weeks just to be
> safe. :)
> 
> 
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
> 


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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