[tri-med] Re: Having difficulty getting baby to accept CPAP
- From: Annette Oseguera <tri18412@xxxxxxxxx>
- To: tri-med@xxxxxxxxxxxxx
- Date: Mon, 15 Jun 2009 09:53:31 -0700 (PDT)
When Annette was itty bitty, she used a nasal cpap. It was a little device
that went only on her nose. It looked funny because it was pink, so it looked
like a pig's snout. I don't know if it would work if your baby moves a lot.
Annette was and still is a very immobile child.
Annette
--- On Sat, 6/13/09, Yin May Tham <tham.yin.may@xxxxxxxxx> wrote:
From: Yin May Tham <tham.yin.may@xxxxxxxxx>
Subject: [tri-med] Having difficulty getting baby to accept CPAP
To: tri-med@xxxxxxxxxxxxx
Date: Saturday, June 13, 2009, 8:47 AM
Hi there moms,
Does anyone have their babies on CPAP? Need advice on how to get my daughter
Vera now 15 months to accept it. The minute we put the mask near her face,
and she feels the air blowing at her, she fights it off, in her sleep! If
anyone had and overcame this problem appreciate if you could share how you
did it. Everytime she turns, the mask shifts. If we make it too tight, it
would be uncomfortable. Also the mask, the Mini Me, is the smallest and yet
it's too big for her, given how small Trisomy 18 babies faces are. The top
nearly touches her eyes, the bottom touches her upper lip.
http://mylittlevera.blogspot.com/search/label/equipment
Her diagnosis is severe Obstructive Sleep Apnea. Thinking of giving up on
CPAP but feeling guilty that if we don't get this up and running she'll
develop Hypertension later.
May
Mom to Vera, full Trisomy 18, now 15 months.
Building ___ooOOoo__ Rainbows
www.trisomyonline.org
Families Helping Families On-line
Building ___ooOOoo__ Rainbows
www.trisomyonline.org
Families Helping Families On-line
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