[tri-med] Re: Having difficulty getting baby to accept CPAP

Hi Nan,

An amusing suggestion was made to one of our carers at the group 
session, when her husband refused to listen to his very loud annoying 
music through the headphones, it was driving her mad. One wag said, 
"I'd be gaffer taping them to his head".

At 12:27 PM 14/06/2009, you wrote:
>I know how frustrating it is to keep the mask on our kids. But my 
>"baby" is 25 years old and he takes it off in his sleep, too,,,,,if 
>I can even get him to put it on in the first place. Anyone have 
>suggestions for that? I am afraid that medicaid is going to take his 
>cpap machine away unless he starts using it more consistantly.
>Nan, mom to Dom-T 18 mosaic, Bipolar disorder and Ali- Autism, TS, ADHD
>
>-----Original Message-----
>From: Yin May Tham <tham.yin.may@xxxxxxxxx>
>To: tri-med@xxxxxxxxxxxxx
>Sent: Sat, Jun 13, 2009 6:47 am
>Subject: [tri-med] Having difficulty getting baby to accept CPAP
>
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>Hi there moms,
>Does anyone have their babies on CPAP? Need advice on how to get my daughter
>Vera now 15 months to accept it. The minute we put the mask near her face,
>and she feels the air blowing at her, she fights it off, in her sleep! If
>anyone had and overcame this problem appreciate if you could share how you
>did it. Everytime she turns, the mask shifts. If we make it too tight, it
>would be uncomfortable. Also the mask, the Mini Me, is the smallest and yet
>it's too big for her, given how small Trisomy 18 babies faces are. The top
>nearly touches her eyes, the bottom touches her upper lip.
>
>http://mylittlevera.blogspot.com/search/label/equipment
>
>Her diagnosis is severe Obstructive Sleep Apnea. Thinking of giving up on
>CPAP but feeling guilty that if we don't get this up and running she'll
>develop Hypertension later.
>
>
>May
>Mom to Vera, full Trisomy 18, now 15 months.
>
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>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
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>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>
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>06/12/09 17:56:00



Jocelyn,  wife to Frank,  Mother to Ian, Gillian and Susan, Nanna to 
Carly 22  Mathew 20,  Ashleigh 19, Alex 17,  and Tess  (Trisomy 18,) 
age 12 yrs,  & Benny the Maltese, plus one amazing DIL and two 
amusing SIL's of whom I'm very fond, and their extended family who 
are too many to list here.   

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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