[tri-med] Re: Having difficulty getting baby to accept CPAP

Nan, I don't know what to suggest about him taking it off in his 
sleep. But as for putting it on in the first place, I know Dom is 
intelligent, so can you say something like, If you put this on when 
you go to bed at night, it will help your brain work better, I guess 
he understands it helps his breathing, but regular apnea free sleep 
will help his brain. I'd be stressing the benefits to his thinking, 
maybe that will get through to him better. Just my two bobs worth.

At 12:27 PM 14/06/2009, you wrote:
>I know how frustrating it is to keep the mask on our kids. But my 
>"baby" is 25 years old and he takes it off in his sleep, too,,,,,if 
>I can even get him to put it on in the first place. Anyone have 
>suggestions for that? I am afraid that medicaid is going to take his 
>cpap machine away unless he starts using it more consistantly.
>Nan, mom to Dom-T 18 mosaic, Bipolar disorder and Ali- Autism, TS, ADHD
>
>-----Original Message-----
>From: Yin May Tham <tham.yin.may@xxxxxxxxx>
>To: tri-med@xxxxxxxxxxxxx
>Sent: Sat, Jun 13, 2009 6:47 am
>Subject: [tri-med] Having difficulty getting baby to accept CPAP
>
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>Hi there moms,
>Does anyone have their babies on CPAP? Need advice on how to get my daughter
>Vera now 15 months to accept it. The minute we put the mask near her face,
>and she feels the air blowing at her, she fights it off, in her sleep! If
>anyone had and overcame this problem appreciate if you could share how you
>did it. Everytime she turns, the mask shifts. If we make it too tight, it
>would be uncomfortable. Also the mask, the Mini Me, is the smallest and yet
>it's too big for her, given how small Trisomy 18 babies faces are. The top
>nearly touches her eyes, the bottom touches her upper lip.
>
>http://mylittlevera.blogspot.com/search/label/equipment
>
>Her diagnosis is severe Obstructive Sleep Apnea. Thinking of giving up on
>CPAP but feeling guilty that if we don't get this up and running she'll
>develop Hypertension later.
>
>
>May
>Mom to Vera, full Trisomy 18, now 15 months.
>
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>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
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>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>
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>06/12/09 17:56:00



Jocelyn,  wife to Frank,  Mother to Ian, Gillian and Susan, Nanna to 
Carly 22  Mathew 20,  Ashleigh 19, Alex 17,  and Tess  (Trisomy 18,) 
age 12 yrs,  & Benny the Maltese, plus one amazing DIL and two 
amusing SIL's of whom I'm very fond, and their extended family who 
are too many to list here.   

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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