[tri-med] Re: Having difficulty getting baby to accept CPAP

I know how frustrating it is to keep the mask on our kids. But my "baby" is 25 
years old and he takes it off in his sleep, too,,,,,if I can even get him to 
put it on in the first place. Anyone have suggestions for that? I am afraid 
that medicaid is going to take his cpap machine away unless he starts using it 
more consistantly.
Nan, mom to Dom-T 18 mosaic, Bipolar disorder and Ali- Autism, TS, ADHD

-----Original Message-----
From: Yin May Tham <tham.yin.may@xxxxxxxxx>
To: tri-med@xxxxxxxxxxxxx
Sent: Sat, Jun 13, 2009 6:47 am
Subject: [tri-med] Having difficulty getting baby to accept CPAP








Hi there moms,
Does anyone have their babies on CPAP? Need advice on how to get my daughter
Vera now 15 months to accept it. The minute we put the mask near her face,
and she feels the air blowing at her, she fights it off, in her sleep! If
anyone had and overcame this problem appreciate if you could share how you
did it. Everytime she turns, the mask shifts. If we make it too tight, it
would be uncomfortable. Also the mask, the Mini Me, is the smallest and yet
it's too big for her, given how small Trisomy 18 babies faces are. The top
nearly touches her eyes, the bottom touches her upper lip.

http://mylittlevera.blogspot.com/search/label/equipment

Her diagnosis is severe Obstructive Sleep Apnea. Thinking of giving up on
CPAP but feeling guilty that if we don't get this up and running she'll
develop Hypertension later.


May
Mom to Vera, full Trisomy 18, now 15 months.


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line



 






                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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