[tri-med] Having difficulty getting baby to accept CPAP

Hi there moms,
Does anyone have their babies on CPAP? Need advice on how to get my daughter
Vera now 15 months to accept it. The minute we put the mask near her face,
and she feels the air blowing at her, she fights it off, in her sleep! If
anyone had and overcame this problem appreciate if you could share how you
did it. Everytime she turns, the mask shifts. If we make it too tight, it
would be uncomfortable. Also the mask, the Mini Me, is the smallest and yet
it's too big for her, given how small Trisomy 18 babies faces are. The top
nearly touches her eyes, the bottom touches her upper lip.

http://mylittlevera.blogspot.com/search/label/equipment

Her diagnosis is severe Obstructive Sleep Apnea. Thinking of giving up on
CPAP but feeling guilty that if we don't get this up and running she'll
develop Hypertension later.


May
Mom to Vera, full Trisomy 18, now 15 months.


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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