[tri-med] Re: Hannah update and question...

----- Original Message ----- 
From: "Janet Leigh King" <jlvking@xxxxxxxxxxxxxxxxxxx>

> Hannah has had her new Bard button for almost a month now and seems to be
> doing well with it. .......weighing in at a whopping 14 pounds and one
ounce!
Yeah, Hannah!  I love to be so excited over things that I used to think were
insignificant!

> At therapy today she fussed and fussed through all three therapies. It was
> almost like she was saying "Hey, I gained weight, what more do you want!"
Mari started this last July.  She's learned to manipulate all of us!

>We don't think it's that she's
> uncomfortable on her belly as she has therapy on her belly and we hold her
> on our shoulder and that presses it against us, but we think that she just
> got used to it in the hospital as that is the way they made her sleep.
I used to really worry about this too.  I didn't think Mari was
uncomfortable,
but thought it would sure feel weird to me.  Now, she regularly rolls from
her
back to her tummy, so it must be fine!

>(A little late... she will be
> 10 months old on the following Saturday!)
Wow,  this is great!  Happy ten month birthday Hannah!

> On the bill front... We got a statement today from a place that we think
is
> who supplies her Synagis shots. It billed our insurance for over $2000 and
> wants us to pay $400 and change. We are a bit irritated as one doctor told
> us that it ran $1000 and one told us $1500.
Ours runs about $1000 for 100 mg.  Mari just went up to (2) 100 mg--long
stupid story, so I'll leave it out!  But no one called us.   You'd think if
your bill
was going to increase $500, someone would call!


>  Now I'm
> not so sure. The envelope we got today had another exercise item in it (a
> piece of rubber tubing to chew on) and a bill for $170 for all the stuff
> she sent. I'm really in a quandary about this. She never said anything
> about "I can send you some things but it will cost XX$." or "I'd like to
> help. My fee is XX$."
Oh my gosh!  I read Karen's post as well as the others on this one.  I
would just be flabbergasted!  The whole thing sounds incredibly
underhanded?  Have you discussed with the friend who put you in
contact with her?  I'm sure she'd be embarrassed & would want to know
so she doesn't refer her any other business!

Blessings Janet to you & Miss Hannah,

Chris mama to Mari full T18 (2.5 yrs.)
Tipp City, OH
http://photos.yahoo.com/MissTippCity
http://home.earthlink.net/~loganfamily/index.html

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
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