[tri-med] Hannah update and question...

Hannah has had her new Bard button for almost a month now and seems to be 
doing well with it. At her weight check a week ago she weighed 13 pounds 
and 6 ounces , which was her highest weight ever! She held that for the 
weight check this past Monday but today she blew it out of the water, 
weighing in at a whopping 14 pounds and one ounce! We were all thrilled and 
I'm sure the pharmaceutical rep in the doctor's office thought everyone was 
nuts making such a big deal over it. TOUGH!
At therapy today she fussed and fussed through all three therapies. It was 
almost like she was saying "Hey, I gained weight, what more do you want!"

She is now being fed 4 ounces at 9 - 12 - 3 and 6 and then gets an ounce an 
hour over night for an additional 8 ounces. She is still sleeping through 
the night but does tend now to sleep on her back where before the surgery 
she would always end up on her belly. We don't think it's that she's 
uncomfortable on her belly as she has therapy on her belly and we hold her 
on our shoulder and that presses it against us, but we think that she just 
got used to it in the hospital as that is the way they made her sleep.

We go for our "9 month" check up on Tuesday. (A little late... she will be 
10 months old on the following Saturday!)

On the bill front... We got a statement today from a place that we think is 
who supplies her Synagis shots. It billed our insurance for over $2000 and 
wants us to pay $400 and change. We are a bit irritated as one doctor told 
us that it ran $1000 and one told us $1500.

Also in the mail today was an envelope from the friend of a friend at 
church. Our friend at church told us to e-mail a friend of hers who is a 
therapist for ideas (this was when we were having problems with feeding 
Hannah.) I e-mailed and got a response with some suggestions and a request 
for our mailing address so she could send us some things. (She said she 
could tell us  some things to do but she'd rather send us the 
instructions.) About a week and a half ago we got a large (9 x 13) envelope 
full of articles and instructions for exercises and several nasal products 
and things to use with the exercises. I took it to therapy to show Hannah's 
speech therapist and was going to bring it back to show her new therapist 
(the center's regular speech therapist is coming back on Monday.) Now I'm 
not so sure. The envelope we got today had another exercise item in it (a 
piece of rubber tubing to chew on) and a bill for $170 for all the stuff 
she sent. I'm really in a quandary about this. She never said anything 
about "I can send you some things but it will cost XX$." or "I'd like to 
help. My fee is XX$." She is on the west coast so we can't go see her. I 
know I mentioned how old Hannah is, I even gave her the blog address, but a 
lot of the excersises are useless at this point as Hannah is too young. One 
of the appliances is made for age 2 and up. We've got a way to go for that! 
Anyone have any opinions on this one?????

Janet
for updates on the family, including news on Hannah Emily, go to 
http://kinglynews.blogspot.com
(latest update - February 10th)  

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