[tri-med] Re: Hannah in the hospital

----- Original Message ----- 
From: "Janet Leigh King" <jlvking@xxxxxxxxxxxxxxxxxxx>
> I also saw the Pulmonary guy and really liked him until he told me that
> they had full T-14 children that did great on the tube and had no
problems.
> What the doc doesn't know (No, I didn't say anything. I was in shock.) is
> that I have done my research and I know that he probably has never seen a
> full, mosaic or mosaic partial T-14 child in his entire life! (Right,
> Michelle???)

I started laughing Janet, you're right, it sounds as if he's seen multiple
t-14's and like you I can't believe he's being quite honest.  :0)

>And I'd be willing to bet I know more about T-14 than he does
> and that's not an awful lot yet. But at least I'm learning!

Probably right again! Those parents here on the lists have PhDs/MDs in
trisomy compared to most of the drs.

 > So they are treating the infection (the culture came back positive) and
we
> are looking at probably being there until mid week, next week.

Poor baby, it just not letting up with Hannah is it? Give her a squish for
me.

Michelle mom to Alex (16, partial trisomy 14 mosaic) and Molly (13)
MichiganUSA


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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