[tri-med] Re: Hannah- G tube

Janet, I keep looking for Hannah updates and I am glad to hear she is 
doing better.

I feel for you having Hannah in the hospital for so long. You must be 
losing your mind.

Can't they leave the G-tube in and send her home? You could do partial 
G tube feedings and partial oral feedings and get all of you out of the 
germy hospital!!

Hope you are home soon..

Mimi (wife to Doug, Mommy to Reilly 8, Keegan 5, and Tierney T18 6 
months)
Chicago
On Nov 21, 2003, at 7:13 PM, Janet Leigh King wrote:

> I so want to be able to just sit down and READ my e-mail. I came home 
> this
> evening as we have been having roommates and it's way too crowded in 
> the
> room that way and I just can't sleep in the crib anymore and still 
> manage
> to stand up straight. (We've had some really interesting roommates! I 
> hope
> hope that the second one survives his "parents.")  Zach has bowling 
> league
> in the morning so I am going to take him to that and then go back to 
> the
> hospital. Donn will stay with Hannah tonight.
> She looks so much better but is still not feeding well. They had been
> feeding her via the G-tube during the night (continuous) but that was
> discontinued last night. We thought it might maker her eat more in the
> morning since she isn't used to getting fed during the night. They also
> upped the feeds to 4 ounces every 3 hours. Unfortunately she is still 
> only
> taking about 2 - 2 1/2 ounces per feed. The doctor said we could try 
> solids
> (veggies and fruit) but very small amounts and after the formula. She 
> still
> gets whatever she doesn't take by bottle via the tube.
>
> The doctor isn't saying when he thinks she will get to go home. This
> morning he commented that they will watch her for "a few days" to make 
> sure
> she gets what she needs nutritionally by bottle (doing a calorie count)
> before they take the G-tube out.
>
> Thanks for all your support!
>
>
> Janet
> for updates on the family, including news on Hannah Emily, go to
> http://kinglynews.blogspot.com
> (latest update November 10th)
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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