[tri-med] Re: Growth Hormone information

----- Original Message ----- 
From: "Karen" <karens@xxxxxxxxxxxxxxxx>
>There
> are also significant side effects (negative) in giving GHT to anyone who
> isnt GH deficient.

There are also possible negative side effects when they are GHD.  And let me
tell you, it  was a huge discussion on the part of Jim and myself, this list
(memories.....) and our families to a lesser degree.


> Remember human growth hormone is the drug that they are racing to try and
> develop a test for before the Athens Olympics. Its the drug that athletes
> and body builders are choosing to give them an edge over their
competitors.
> Its also destroying the lives of many people in the process.

Karen, is that more due to the fact that those using it are NOT medically
GHD?
I get e-mail 'ads' all the time for HGH for 'anti-aging'.


>
>We discussed giving Alex GH even though he wasnt clinically GHD. I
> decided against it at the time, and in hindsight I still think that was
> wise.


Isn't it GRAND when hindsight isn't bitting you in the butt?????

> I am not against GHT - far from it - I actually encouraged Michelle to
> pursue it with her Alex -

Yep, it's true!  Karen was a WONDERFUL devils advocate for Jim and I at that
time. She had great ideas, comments, questions etc that really helped us to
explor all avenues and the pros and cons of each decision. It was most
certainly one we did NOT make lightly.


> Use the Omega's - that alone increased Alex's
> functional IQ score.

You know, there are times that I wonder what and if supplements, our own
'home' programs for stimulation/growth, GHT etc are 'responsbile' for the
brain developement that Alex currently enjoys.....or is it a combination of
things, luck or a gift?
There are so many things we've tried (some discarded and some still being
used) over the years......giving it a few months, starting with a 'little'
and watching to see what happens, deciding to stay with it or stop it and
what do we do next. Literally years of this.

It's really been the past 2 years (due somewhat to Alex's 'teenaged
attitudes' and developement) that I've been more like a 'normal'
parent.......not constantly exposing, exploring, helping to the Nth
degree.....a letting more things progress at their own pace. And in some
ways this 'new' approach has had some benifits of it's own.  :0)

 > And while you are at it - say a few prayers for me as I decide whether to
give Alex an equally dangerous drug >to decrease his growth hormone
production. I too am questioning the wisdom of playing with G*ds balance.

{{{{{{{{{{{{Karen}}}}}}}}}}}}}}}}}}}
I feel your pain.

Michelle mom to Alex (17, partial trisomy 14 mosaic) and Molly (13)
MichiganUSA


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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