[tri-med] Re: Growth Hormone information

I am telling ya!  Why would they fight this if according to this information 
and others it does help.  This is so frustrating.  If this could help our kids 
then you would think (I know I know common sense to us is not always welcomed) 
they would look into it and due further studies.  Tina
> 
> From: "jwaite" <jwaite@xxxxxxxxxxxxx>
> Date: 2004/07/27 Tue PM 04:18:56 CDT
> To: <tri-med@xxxxxxxxxxxxx>
> Subject: [tri-med] Re: Growth Hormone information
> 
> 
> ----- Original Message ----- 
> From: <victorian17109@xxxxxxxxxxx>
> 
> 
> > I found this website yesterday with information on trisomy 18p that
> increases developmental progress when treated.  I know that the growth
> hormone was brought up before and I wanted to know what any of you might
> have thought about it.  Here is the information.  Tina
> > http://www.chromosome18.org/testimony00.htm
> 
> As you know Alex received GHT (growth hormone therapy) for 3 years (it was
> discontinued due to a slow down in growth and his 'growth plates' beginning
> to close).
> 
> We SAW a jump in skills within a few months of beginning the GHT but that is
> NOT why he was placed on it.
> 
> Alex was diagnosed (via a bone age study and the clonidine/argenine testing)
> to be GHD (growth hormone deficient). The pediatric endocrinologist totally
> DENIED that there was any correlation of the developmental jumps to the GHT
> even though I'd been told of cases (via Karen) of tri-18's having
> experienced the same as well as one other t-14 (anybody who remembers
> Marcus, Joanna's son) who also began to eat orally after starting the GHT
> (not easily but he did).
> 
> Michelle mom to Alex (17, partial trisomy 14 mosaic) and Molly (13)
> MichiganUSA
> 
> 
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
> 
> 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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