[tri-med] Re: Growth Hormone information

her bone scans were spine and thigh.  so not wrist ever, isnt that odd?
i think she is always in the "person of interest" category as far as ght
goes.  while i would love to see what kind of cognitive gains she might
obtain, i am the person positiioning her 100% of the time.  some of you have
seen her at conference and while she is not in the upper %tiles she is big
for a full t18.
things like kam decides to dance while you are carrying her to the car (did
i mention she can not walk but hates her wheelchair!) can totally throw your
back out of wack!
jude, photography student and
mom to derek-18, kelsey-16
and kameron-7-full t18
golden, colorado usa
http://home.comcast.net/~jfwolpert2
http://jude-pix.fotopages.com

----- Original Message ----- 
From: "Karen" <karens@xxxxxxxxxxxxxxxx>
>
> They may have done a bone age at the same time and just not mentioned it.
A
> bone age is simply an x-ray of the wrist, there is nothing special about
it.
> Whats special is looking up the results on an index.
>
> When we were doing all of this for Alex he was 2 years old and everything
> was borderline. By that I mean his IGF-1 was ok - just, his bone age was
18
> months behind - which could be called either way as far as GHD is
concerned.
> He had idiopathic hypoglycemia - an indicator of GHD and so on.
>
> He never did get the GH as we decided to wait. At last measure his bone
age
> was more than 2 years ahead of his chronological age. That in itself is
also
> "borderline" as being "too" old. Whats significant (and of concern) for
Alex
> is that he went from 18 months behind to more than 2 years ahead in only a
> couple of years. To put it another way - he went from below the third
> centile (typical trisomy growth) to close to the 100th centile within 18
> months. He is now over the 100th centile and still climbing.
>
> >>If she was more
> > advanced developmentally and self mobile i would be considering totally
> > different scenarios.
>
> I agree, my greatest concern is that people will use GH for the wrong
> reasons and expect miracles. Like everything I just hope everyone weighs
up
> the pros and cons of any therapy.
>
> > is that ok?
> Its us that should be asking YOU if its OK to ask you to share. Its not an
> easy decision at the best of times, none of these are. I know you did your
> research though - and if things change you can also change your mind. Sure
> the younger you start the more growth potential there is, but even thats
not
> guaranteed.

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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