[tri-med] Re: Great news!

Thank you for sharing the news of the birth of your beautiful new son. Wow, he 
sure was big.....and long! 

I hope that you will be home soon and that you will find time to post some new 
pictures of the whole gang.

All the best to you all. 

Barb
Annie's mom 



> From: garycomp@xxxxxxxxx
> To: tri-med@xxxxxxxxxxxxx
> Date: Wed, 28 Jan 2009 22:42:24 -0500
> Subject: [tri-med] Great news!
> 
> Hi,
> We have great news - Elizabeth gave birth to baby Benjamin on Saturday 
> evening at about 9:30PM!  He weighed 8lb 9oz and is 22 inches tall.
> 
> Benjamin began to have some difficulty keeping his body temperature and O2 
> levels where they should be.  As a result, the doctors decided to place him 
> in the Neonatal Intensive Care Unit (NICU) where they can continuously 
> monitor his health.  He had an echo-cardiogram performed on Sunday to 
> determine if there are any defects in his heart that can be contributing to 
> this condition.  Benjamin has a number of signs that indicate he has Down's 
> syndrome.  We had a chromosome test done on Sunday but won't have the results 
> back for a couple of weeks. However, the doctors seem pretty sure that he has 
> Down's syndrome and Elizabeth and I also have a strong feeling that Benjamin 
> has Down's syndrome.
> 
> Elizabeth and I were a little surprised when the doctor's told us of 
> Benjamin's symptoms and the initial diagnosis of Down's syndrome and a little 
> sad, but we are so grateful that the Good Lord has given us this beautiful 
> baby boy - he is precious!
> 
> As of about lunchtime today, Benjamin's O2 levels have improved significantly 
> - he is just about ready to come off of external O2 - and his feeding is 
> great (it's now at the normal level).  However, his blood work last evening 
> indicated that he may have an infection.  As a result of this, another blood 
> sample was taken, along with a spinal tap, in order to make sure about the 
> infection and to determine if it was in the spine (this would be menangitus). 
>  The best case scenario is that the results will come back in 2 days 
> indicating that there was a false-positive in the previous results.  If this 
> is the case, Benjamin will then likely be able to come home on Friday.  On 
> the other side of the spectrum, if the results indicate that there is an 
> infection and that it is menangitus, then this would require Benjamin to stay 
> in the NICU an additional 14 days.  Benjamin has some heart difficulties - 
> this is common with Down's syndrome children - but nothing that would require 
> immediat
>  e attention.  Benjamin looks great - he really is a beautiful baby (not that 
> I'm biased!) - he's very alert when he's awake and he is beginning to nurse 
> little by little.  All in all, things are looking very good for Benjamin.
> 
> I'll keep you all posted.
> 
> Thanks
> Gary (and Elizabeth) parents of Daniel (19), Michael (18), Joshua (15), 
> Rachel (13), John (11), Nathan (10), Esther (7), Stephen (T13 Mosaic, born 
> 10/5/04), and Benjamin (preliminary diagnosis T21, born 1/24/09)
> 
> 
> 
> 
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
> 

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