[tri-med] Re: Good News

YEAH!!!  We need more of the good news!!!

Nanci, Wife to Mike, my kind, PATIENT, and loving husband;  Mom to Alicia
(19 and a nursing major at Stephen F. Austin),  Shani (13,  homeschooler,
basketball player, and my BIGGEST helper) Soleah (Trisomy 18 m  9 yrs old,
who each day reminds me that tommorrow is not promised) Corey (17 months
old,  walking, talking, and shooting baskets!)

This is the day that the Lord has made; I will rejoice and be glad in it.
Psalm 118:24

My church home:  www.yourwcc.org

Trisomy websites:
http://www.trisomyonline.org/
http://www.chromosome18.org/
http://www.trisomy.org/

----- Original Message -----
From: "Karen" <karens@xxxxxxxxxxxxxxxx>
To: "Tri-med" <Tri-Med@xxxxxxxxxxxxx>
Sent: Monday, February 17, 2003 12:26 AM
Subject: [tri-med] Good News


>
> I have some good news to share :-)) As that that guy says on TV - I am
soooo
> exxxxxxxxxxcited.
>
> I got a phone call today from Learning Links telling me that Alex has been
> accepted into their tutoring program. Basically its an hour of tutoring
> every week for 12 months in a small group of three with speech therapy to
> help him catch up with all the school work that he misses/has missed due
to
> illness. The best part is that its all paid for by Ronald MacDonald
> children's charities!! (they also have specific sessions for executive
> reasoning remediation!!!)
>
> Its such a blessing - not just because it will help him catch up again (he
> missed over a term of school last year and is now battling the effects of
> residual hypoxic injury to boot) but it also provides speech therapy -
> something that he has not had or qualified for in ages due to cracks in
the
> system. Despite the fact that he needs it - and everyone agrees that 12
> months of intensive speech therapy would make a tremendous difference!!
And
> now he is going to get it - I am sooooooooo excited!!!! (ask Betty - she
has
> had to listen to me whooping for the last couple of hours) Its not
something
> that I would have ever been able to afford otherwise.
>
> I didn't think he was going to get in because of the primary trisomy
> diagnosis - they can't have been diagnosed with a pre-existing cognitive
> disorder. But I argued around that one, because of the mosaicism (the
first
> time I have used that), and won because his previous neuropsych's were in
> the "normal" range - and the current one showed evidence of hypoxia which
is
> directly related to his illness (the Shapiro's)
>
> We start at the end of March.
>
> So please everyone - go and buy a Happy Meal and raise your Coke to Ronald
> MacDonald and thank him for us :-)) I am going to PARTY!!!!!!!!!!! And I
> promise never to complain about our local McD's making a mess of our order
> :-))
>
> "Write injuries in sand, kindnesses in marble."
> - French Proverb -
>
> Keep Looking for Rainbows!!!
> Karen, Mum to Alex (8, T-18 mosaic)
> Sydney, Australia
> http://members.optushome.com.au/karens
> http://www.trisomyonline.org
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

Other related posts: