[tri-med] Genetic Privacy and Genetic Discrimination
- From: "Karen Schuler" <karens@xxxxxxxxxxxxxxxx>
- To: "Tri-med" <Tri-Med@xxxxxxxxxxxxx>
- Date: Wed, 28 Aug 2002 10:16:59 +1000
If anyone wants to read the discussion paper (880 pages) it will be launched
in about 1 hour and will be available on the web site
http://www.alrc.gov.au/ of the Australian Law Reform Commission.
I havent seen it, and sadly have an appointment at 11.00am so I wont see it
till tonight - but I wait with baited breath. You will know if they listened
to me if you see the quote "Genetic information is not a medical diagnosis
but simply the genetic profile of a person that is subject to the
variability of genetic expression" - the head of the commission asked my
permission to quote me - and that premise my friends was the key to my
submission.
Don't judge each day by the harvest you reap, but by the seeds you plant.
Robert Louis Stevenson
Keep Looking for Rainbows!!!
Karen, Mum to Alex (7, T-18 mosaic)
Sydney, Australia
http://members.optushome.com.au/karens
http://www.trisomyonline.org
Building ___ooOOoo__ Rainbows
www.trisomyonline.org
Families Helping Families On-line
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