[tri-med] Re: GHT

Jude,

I have found the contacts to be wonderfull!  Thank you again.  I will be
asking them also.

Nicole mom to Alyssa 4 (going on 21, keeping me busy, and keeping my hair
from getting to long because I'm pulling it out), Sierra 2.9 years (partial
trisomy 18 q, my brightest ray of sunshine on a gloomy day), Kobey 1 (true
mama's boy through and through, climbing, pinching, and loving), and Joe my
wonderful husband of 8 yrs. (without his support I would be in the funny
farm by now!)
----- Original Message -----
From: "Jude Wolpert" <jfwolpert2@xxxxxxxxxxx>
To: <tri-med@xxxxxxxxxxxxx>
Sent: Thursday, December 11, 2003 10:07 PM
Subject: [tri-med] Re: GHT


> the chromosome 18 registry is very big into ght treatments for kids with
> deletions.  did you find any of those local contacts helpful/  i would ask
> them if so.  if not you might want to talk to jannine.  i have had kam's
ght
> checked and she is borderline low but we are not pursuing treatment at
this
> time.
> jude, mom to derek-17, kelsey-15
> and kameron-6-full t18
> golden, colorado usa
> http://home.comcast.net/~jfwolpert2
> ----- Original Message -----
> From: "Nicole Jones" <jones@xxxxxxxx>
>
> > How does this come about?  What kind of testing do they do to check if
> your body is producing enough?  What prompts the investigation: slow
growth,
> not maintaining their curve?  I have been hearing alot about this and was
> wondering if this would be something to check into for Sierra.  What has
> your experience been with it?  Any information would be appreciated.
Thanks
> in advance.
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>
>

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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