[tri-med] Re: GHT

----- Original Message -----
From: "Nicole Jones" <jones@xxxxxxxx>
> Were you sent to the endocrinologist because of Alex's slow growth?

Nobody ever knew anything about trisomy 14 let alone mosaic/partial trisomy
14 so any "issues" that cropped up sent us off to the appropriate
specialist.

What got us to the pediatric endocrinologist was "failure to thrive".

> We have
> never seen one before....I never knew there were so many specialist out
> there before Sierra:o)

Yeah, who knew??? lol


> Would intrauterine growth retardation and failure to thrive qualify you to
> be involved with "The Magic Foundation"?

You don't have to "qualify" to join, just have a growth related issue. They
do have a special section for IGR though.  :0)  Just click on that and off
you go.

You can check out them out at www.magicfoundation.org
MF is a non-profit that was created by 5 families with children who had
growth issues. It's a services/support group with a hand in pushing some
research.

They also have some specific genetic conditions that typically have growth
related problems. Also a section about dental problems related to GHD,
"failure to thrive" etc.

Michelle mom to Alex (16,partial trisomy 14 mosaic) and Molly (13)
Michigan USA




                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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