[tri-med] Fwd: Re: HELP URGENT JUST DIAG T13 DOC' SAY LET DIE HELP

Thought I'd pass this along; it appears it was sent to me from someone through 
Therese Ann's site.
madjake00@xxxxxxxxxxx wrote:From: <madjake00@xxxxxxxxxxx>
To: <bjnmarketing@xxxxxxxxxxxxxx>,
<geduggan@xxxxxxxxxxx>,
<jim_grode@xxxxxxxxx>,
<Mimundo5@xxxxxxx>,
<toraalsmom@xxxxxxxxx>,
<Mukeni@xxxxxxxxx>,
<NRaphael@xxxxxxx>,
<Cindy.Sampson@xxxxxxxxxxxxxx>
Subject: Re: HELP URGENT JUST DIAG T13 DOC' SAY LET DIE HELP
Date: Wed, 30 Mar 2005 21:38:08 -0500

I know that there are a few people in Florida with t-13 and t-18 kids. I 
would immediately contact Dr. John Carey, who is a HUGE advocate for our 
children. Unfortunately, I can't find his contact information right now. 
Does anyone else have it?

Also, go to this link: http://members.optushome.com.au/karens/ and join 
the trisomy listserv. There are so many folks on there who will help 
you...some from the Orlando area, I believe.

Good luck...please let me know if I can help in any way. It might also help 
to show the doctors our kids' pictures and stories.

Kristin Ward
mom of Hannah - t-13 and a typical 4 year old
----- Original Message ----- 
From: 
To: ; ; ; 
; ; ; 
; 
Sent: Wednesday, March 30, 2005 9:05 PM
Subject: HELP URGENT JUST DIAG T13 DOC' SAY LET DIE HELP


> To anyone who can help:
>
> I am trying to find help for my new nephew born 5 days ago and just got 
> report on positive T13 and he has a bad heart and the doc's all say no 
> surgery that just let him die! He looks normal is on respirator , his 
> bowels and all are working. I just can't accept there is no hope? Can you 
> tell us your doctors name. We are in Orlando Fla.
>
>
>
> Brenda Nicholson
> visit my world at
> www.helloworld.com/inlivingemal
> 




                
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