[tri-med] Fw: [tri-family] Fwd: Re: {infantilespasms} decreased white matter

OOPS...just noticed...after reading Karen's ADMIN post...that I just replied
to sender not realising this should have been on Med List....SORRY
Karen....beat me :o(
Penny
----- Original Message ----- 
From: "Penny Victor" <pvictor@xxxxxxxxxxxx>
To: <tri-family@xxxxxxxxxxxxx>
Sent: Saturday, July 31, 2004 10:02 AM
Subject: Re: [tri-family] Fwd: Re: {infantilespasms} decreased white matter


> ----- Original Message ----- 
> From: "r larson" <neveahsent03@xxxxxxxxx>
> Subject: [tri-family] Fwd: Re: {infantilespasms} decreased white matter
>
>
> > I asked what decreased white matter in a child with out seizures means
and
> this is the first response I got.... dont know if its the same, or if it
> helps :o)
> >  Rachael mom to Jeremiah and Aleah dx IS resolved , focal partials and
> partial trisomy 14
> > Note: forwarded message attached.
> >
>
> Hi Rachael :o)
> I missed the original post asking this...but I looked at the report for
> Devon's MRI at 3 weeks because I remembered there being SOMETHING about
> decreased white something???? Well...what it says is "The demyelinization
> pattern shows probably minimal delay". I remember asking what that was and
> it was described to me a a "white coating"...and we were told that Devon
did
> not have as much as he should...could this be what you're talking about???
I
> was also told that the decreased myelinization could very well "catch up"
> with some time. Devon does not have siezures of any kind that we're aware
> of. They did not make a big deal about this finding in his MRI...and so we
> did not worry either. It could have been because everything else was
normal
> about his MRI (structurally correct...no midline defects)...or it could
have
> been because Devon was only 3 weeks old at the time and they figured he
> wouldn't be alive anyway so why worry??? I'll never know....
> He's 9 yrs old now...and I suspect his myelinization has "caught up" just
> fine...and still no seizures...although we still worry that they could
start
> any time...
> Love,
> Penny...loving and devoted wife to Joe, the best husband in the
world...mom
> to Nick (13 yrs old...lover of Yu Gi Oh, RollerCoasters, Chocolate
Icecream
> with Ovaltine sprinkles), Devon (9 yrs...lover of Barney, Blue, Bear in
the
> Big Blue House, Elmo, Stuart Little, Teletubbies and food in
general...Full
> trisomy 13 w/balanced translocation 5 and 13) , and Trooper the Wonder
> Dog...our 6 or 7 year old male yellow lab adopted from FL Lab Rescue
> 12/13/02 :o)
> Web Pages to come soon...
>

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

Other related posts: