[tri-med] Re: Fw: subscribe

[hi , i am a proud grandmother of a little boy who has recently been
diagnosed with trisomy 18 mosiac 60%.]

Hello! It's nice to see another grandmother on the list. My granddaughter,
who has full T-18, just celebrated her first birthday. Although she is on
oxygen because she has a heart problem, and feeds using an NG tube (although
she will take some food by mouth now), she's had no health crises during her
first year and is doing wonderfully. She was a normal birth weight (6 lbs.,
5 oz.) and is now 14 lbs., so her growth could be considered a bit slower
than non-T-18 babies. Her development is probably at a 6 mos. level. She
smiles and laughs (showing all her 4 teeth!), can put her fist up to her
mouth, can almost roll over, can sit up for a few minutes when placed in
that position, pulls her aunt's hair (my youngest daughter), and can hold
onto and shake rattles and toys. She wears glasses because she's farsighted
and has to have her eye patched because she's somewhat cross-eyed.

Her mother works with her every day on physical therapy and developmental
things. The state sends a physical therapist and someone else who deals with
developmental stuff (can't remember what that person is called). Her
prognosis when she left the hospital after three weeks in the NICU wasn't
all that great, according to doctors. Luckily, doctors can be wrong, and the
grim prognosis was not accurate in my granddaughter's case. Every T-18 child
is different, with different health problems, and responses to those health
problems. I hope that your grandson will be as lucky as my granddaughter,
and will continue to give you joy for many years.


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line



                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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