[tri-med] Re: Fw: knee caps

In a message dated 6/28/03 10:57:48 AM, jfwolpert2@xxxxxxxxx writes:

<< well he wouldnt recommend surgery for someone that wont be doing much (i 
didnt want surgery anyway).  i had been putting braces on her knees and he said 
in 25 years of treating kids with crhomosomal abnormalities he had never thot 
to use pattelar (sp?) braces on them. >>

Good thing he wasn't Dom's ortho. Dom had club foot correction when he was 
less than six months old and no one had any idea what his prognosis would be. 
And He has had four hand sugeries and one more to go. He has harrington rods in 
his back to correct the scoliosis and would have had leg length surgery if his 
mental illness had not gotten in the way. But that would have required great 
compliance and motivation on Dom's part, and he just wasn't in that place 
then. He was also lined up with cranial facial for jaw surgery in order to even 
out his face a bit and correct his bite. But that also requires compliance and 
motivation. Two years ago he just told me he could not wear retainers anymore, 
all of his orthodontia was complete and he just didn't want to deal with it. 
It is ironic that the surgeries he did not have had nothing to do with his 
trisomy issues. His knee caps have slipped three times in the last 8 years.  
Since 
Chelsey has been having problems, he has decided that he has this problem 
"all" the time. All three times he has been running or horsing around. But I 
guess it could become chronic. Guess we will just have to wait and see.  

Nan---Mom to Dom, 19; Tri18 Mosaic, Bipolar Disorder and Ali, 19; Autism, TS, 
ADHD 
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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