[tri-med] Re: Fundo/peg questions

On Wednesday, September 17, 2003, at 10:19 PM, gmac wrote:

> Hi everyone maybe you can give us some info. Our daughter Kelly (T13) 
> who
> just turned 3 last week just had swallow and GI tests that showed 
> aspiration
> and reflux. A fundo and peg/feeding tube is being recommended. We are 
> for
> the feeding tube as she is losing weight and choking alot on everything
> orally. But we are concerned about putting her through the fundo 
> procedure
> and the after effects. We don't want to cause her more problems or
> discomfort in the future. How involved is the surgery and the recovery,
> after?

 From our perspective--do both!  Our daughter Keren (almost a year, T18) 
had g-tube/fundo surgery back in May.  We went the fundo route in 
addition to the g-tube mainly due to her reflux.  Fortunately she 
wasn't aspirating, but there was the concern that she might, and the 
fundo would help eliminate that concern, as well as the severe reflux.  
She had her surgery done laproscopically, which is much less invasive, 
and as a result, has less of a recovery time.  She was out of the 
hospital within three days.

I'd say if you haven't discussed it with your doctor, have him explain 
the whole procedure to you and the possible ways to do it.  Our doc 
drew us some basic sketches that made it all make a lot more sense!

The fundo has been a big help, but yes, there are quirks.  Recently 
Keren's been spitting up again and so we just had a test done to see if 
the fundo was still as it should be (they are known to come undone at 
times....).  What do you know, but the contrast study showed that 
everything was as it should be (the fundo was just as the doctor had 
originally done it).  Our doc has had this happen before, but he did 
reassure us that her reflux (as shown on the study) was much less than 
it would be without the fundo.

Hope this info helps a bit!  I wish it were a 100% success story to 
share with you, but I will say it's definitely been an improvement!

Loren (wife to Kraig, mom to Keren, T18, 11 mo. and counting! :) )
Southeast Michigan
http://webpages.eng.wayne.edu/~ad6075

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
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