[tri-med] Re: ?? For William

----- Original Message ----- 
From: "William Heisler" <mukeni@xxxxxxxxx>
Subject: [tri-med] Re: ?? For William


. My wife has brought up a desire to institutionalize her at times, and 
well, our marriage has never been very good. Anyway, in the event of 
breaking up Phoebe is to come into my sole custody.

Hi William :o)
I'm really sorry to hear about the above...but happy for phoebe that she has 
a dad who wants to step up like that. Personally...I can't imagine 
institutionalizing Devon...now ME???? That's a definite possibility :o) I 
know there are instances where institutionalizing a child is necessary...I 
just really hope that I'm never put in that kind of position.


> Yes, I knew about the Atlantic City family, and my wife did speak with the 
> mother before and after their child departed. They were considering coming 
> to the little regional fall gathering of SOFT families in Maryland 
> organized by the Harpers in 2003.

I really need to call Nynell...it's been over a month since I've talked to 
her...since I just got a couple phone cards given to me, now maybe I can 
call her??? With Renny's re-election campaign gearing up...I would imagine 
things are about to get even more chaotic than usual around that house.


> We attended 2003 and 2004 and have met other T13 families. The Pitts of NJ 
> with their big girl Kimmy (> 20 years old),


I believe I have met Kimmy before?? Is she african american??

>the Freiers of NJ (I had seen there angel daughter's pictures on the web 
>and she looked so much like Phoebe), and another family from PA who had an 
>angel T13 son - their surname escapes me. Also, there is the newly revealed 
>Raphael-Alisca family in NY (daughter is on Therese Ann's site: 
>http://www.livingwithtrisomy13.org - you can find out a little bit about 
>Phoebe there as well.)


I don't know the first 2 :o( But I HAVE already looked at Phoebe's pictures 
and story...although I haven't yet watched the movie ;o) She's 
adorable....but of course you know that :o)



> By the way, I learned how to operate AB Dick offset printing presses by 
> about 12 years of age; my father had a few in the basement as well as a 
> Davidson. Before starting my chemistry line of work I had a job at a place 
> that had a two color Hamada as well two AB Dicks. The Hamada's not any 
> harder than a AB Dick 360 chain delivery with a two color head.


How cool is that??? I've been running a Ryobi with a T-Head (now retired 
thank goodness)...an AB Dick 9810...still running that when I need 
to...mostly trying to use it as an envelope press leaving it set up with the 
envelope feeder on it or running short run 1 color stuff...but really kinda 
liking the Hamada better (I really like the push guides) :o) The Century 
3000 that the Hamada replaced is now the equivelent of a boat anchor...it's 
being sold off in usable parts...and the Ryobi's for sale too. We use to 
have a 360 shoot...it was sold to someone in Guatemala or some such place 
like that??? I've been working at this shop for 17 years now...and I worked 
for a Quik Print in Anchorage for a year before that :o)
Take Care William...and if you ever need to talk...gimme a holler :o)
Love,
Penny...loving and devoted wife to Joe, the best husband in the world...mom 
to Nick (14 yrs old...lover of Dragons, Turtles, Yu Gi Oh, RollerCoasters, 
Chocolate Icecream with Ovaltine sprinkles, Devon (9 yrs...lover of Barney, 
Blue, Bear in the Big Blue House, Elmo, Garfield and food in general...Full 
trisomy 13 w/balanced translocation 5 and 13) , and Trooper the Wonder 
Dog...our 8 or 9 year old male yellow lab adopted from FL Lab Rescue 
12/13/02 :o)
Please visit the webpage my wonderful friend Karen made for me on our 
trisomy listserv at...
http://www.trisomyonline.org/victor.htm
AND...Devon's moment of glory in Exceptional Parent Magazine...
http://www.eparent.com/familiarfaces/ffaces_4_01.htm
AND...see our 3 handsome boys on FL Lab Rescue's website at:
http://www.labradorrescue.net/success/index.html (Look for the name Trooper)
AND one more now :o) http://www.thehealingpowerofprayer.com/album.htm
"The stone that the builders did not want became the cornerstone." (Psalms 
118:22) 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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