[tri-med] Re: FayeRe: Do tri 13/18 kids experience joy?

HI Faye,
I agree, but that is the problem. This is a seasoned and experienced 
neonatologist who has been directing parents on choices to make for decades. 

One of the administrators at the hospital that we had our troubles at told us 
that in one internal meeting pertaining to our situation, one of our daughter's 
physicians, asked, "But who would want a child like that anyways?"  Now I 
understand why. 

Our very aggressive government-run genetic screening/testing/termination 
network uses teaching materials for physicians that show a severely afflicted 
(likely stillborn) infant with trisomy 13 alongside a picture of a cyclops as 
if to make the comparison of two monsters side by side. (I am happy to forward 
the picture to anyone upon request)

Those who stand to profit by a reduction in medical costs that are realized by 
the elimination of some kinds of kids, encourage the belief that genetic kids 
are like non-sentient monsters with no worth whatsoever. 

So, how do we make the truth be known?

Barb



> Subject: [tri-med] Re: Do tri 13/18 kids experience joy?
> Date: Wed, 27 Aug 2008 10:13:11 -0500
> From: fkaufman@xxxxxxxxxxxxxx
> To: tri-med@xxxxxxxxxxxxx
> 
> The doctor obviously spoke with out first hand knowledge!
> 
> -----Original Message-----
> From: tri-med-bounce@xxxxxxxxxxxxx [mailto:tri-med-bounce@xxxxxxxxxxxxx]
> On Behalf Of Barbara Farlow
> Sent: 08/26/2008 8:10 PM
> To: tri med lists; triwings
> Subject: [tri-med] Do tri 13/18 kids experience joy?
> 
> Hello friends in trisomy,
> In communication recently with an experienced neonatologist, I was quite
> surprised to read that he believed that children with tri 13/18 were not
> worth saving because they were "not sentient", which means that they are
> not capable of experiencing joy or interacting with their surroundings. 
> 
> Wow. This is certainly not what I saw when I did research before my
> daughter was born. Sure, it is a tough road, with a lot of sacrifice.
> But as for not experiencing joy....
> 
> I sent him some videos; a child with tri 13 and mieko videos (I made
> special mention of the one aptly named, "giggles")
> I seriously wonder if loving parents see something as clear as day that
> physicians and the medical system are blind to. 
> 
> Does anyone have any comments about this? 
> 
> By the way, the ironman just finished his 11th race to increase
> awareness. He is getting more and more press each time. It is pretty
> exciting. 
> 
> www.ironmanforkids.com
> 
> Barb  (mom to Annie)
> 
> _________________________________________________________________
> 
> 
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
> 
> 
> 
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
> 

_________________________________________________________________


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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