[tri-med] FYI - Families and Genetic Diagnoses in the Genomic and Internet Age.

****I am forwarding this article or URL for your information (FYI) as I believe 
it may be of interest and is from a reliable source. As always, check the 
information with your own doctor or health care professional before starting or 
changing any treatments.****
http://www.iycjournal.com/pt/re/iyc/abstract.00001163-200601000-00003.htm;jsessionid=EA7MPdmsIYUrqJP91XFjgW2EZ2GZzflhnzCze58nY3URJN8BEaNC!-1738699248!-949856145!9001!-1

Families and Genetic Diagnoses in the Genomic and Internet Age. 
Infants & Young Children. 19(1):16-24, January/March 2006.
Skinner, Debra PhD; Schaffer, Rebecca BA 
Abstract: 
The explosion of new knowledge and technologies stimulated by the Human Genome 
Project has ushered in the "genomic age," where genetic components of diseases 
and disorders, their links, and processes are increasingly being revealed and 
understood at the molecular level. The genomic age coupled with the Internet, 
which offers quick access and circulation of information as well as numerous 
sites in which "knowledge" can be recreated or disputed, is changing the 
contexts and experiences of early childhood disability. This article examines 
this transformation using data from an ethnographic, longitudinal study of 
parents of young children with suspected or known genetic disorders. Here we 
describe how genetic information and the Internet affect parents' search for 
and understandings of genetic diagnoses, and how these 2 cultural forces may be 
changing medical, early intervention, and special education practices. 

(C)2006Lippincott Williams & Wilkins, Inc. 

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