[tri-med] Re: Evidence-based medicine

With GINA in place it essentially affords our children the right to be 
> treated on what is wrong in conjunction with their genetic profile - not 
> solely on the genetic profile.

That is an excellent point, Karen. 

I am glad to hear that you are working on a similar law in Aussie. 

As far as I am aware, there is absolutely nothing in the works in Canada. 

Here, rationing is being developed, in part, based on the "values of the 
majority". 

I guess the challenge is to have the doctor see the child as a patient "with 
some issues" rather than a "trisomy 13/18" 

I think that is a very big challenge. The director of the NICU at our big 
children's hospital told me, "it doesn't matter how mildly affected the child 
seems to be. The trisomy is in every cell and any treatment, even a palliative 
surgery, is futile."

Barb

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