[tri-med] Re: Evidence-based medicine

----- Original Message ----- 
From: "Nanci Grimes"
>> Everyone agreed that this term throughout the medical community is a 
>> method of sharing knowledge improving health care.

I agree Nanci,
Evidence based medicine is essentially what western or modern medicine is. 
Its the reason that John Carey worked so hard to get those early studies 
done to show that our children aren't in a vegetative state, that they reach 
milestones. Because it provides evidence. There is of course good and bad in 
it - it means that we can't ignore the Atlanta study on cardiac care. Its 
why we must keep the research going and get it to cover LARGE numbers of our 
children not isolated case studies.

From what I have seen of private medical care in the US its pretty much all 
provided on evidence based medicine.

In real terms I guess it means that they wont cover things such as growth 
hormone therapy for cognitive improvement (no research, or limited research 
to support that) but you will get growth hormone therapy for GHD. Similarly 
you probably wont get HBO or chinese herbs for fertility.

I agree with Neil on the fact that we always have to see what the laws 
actually say - if we could take politicians at their word or for their 
promises it would be a vastly different world that we live in. I was worried 
about the "hype" of the new wording for those proposed changes to Aussie law 
on disabled parking until I actually read the proposed laws. I was worried 
that kids and folks like Alex would be excluded because though dont use 
wheelchairs but still need proximity parking because of equipment - the law 
covers that - and will cover a lot of the folk the hype was saying would be 
excluded.

Karen
(mum to Alex T-18 mosaic, 14 years and counting the sleeps till we go away)


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
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