[tri-med] Re: Evidence-based medicine

Hey list Mum,  I see a "political storm" brewing, maybe its time for 
a reminder of what the list is about. Over to you!

At 03:55 PM 24/07/2009, you wrote:
>I am both a parent of a 22 (soon to be 23) year-old daughter with 
>T-18 mosaic and a law professor who has followed issues relating to 
>health care for over 20 years (and who has written several law 
>review articles about health care issues). I am writing this e-mail 
>from the SOFT meeting in Roanoke.
>
>There is certainly room to debate (and to do so vigorously) both 
>about specific provisions in the various health care bills that have 
>been introduced in Congress and about the general idea of addressing 
>issues of access to health care in the manner suggested by the 
>president.  I disagree, however, with the suggestion by Ms. Nafziger 
>that the words used either by the president or by the bills that 
>have been introduced have the "legal meaning" attributed to them by 
>Ms. Nafziger.  What is the "evidence" (to use her word) that they 
>have this legal meaning?  The full text of the bills that have been 
>introduced is available to all.  Is there evidence in the text of 
>those bills to support that assertion of legal meaning?  If so, I 
>would like to see it.  If not, I suggest that it would be helpful to 
>all to refrain from portraying policy disagreements as legal analysis.
>
>Neil Cohen
>
>
>
>Date: Thu, 23 Jul 2009 09:46:05 -0700
>From: "Audry Nafziger" <Audry.Nafziger@xxxxxxxxxxx>
>Subject: [tri-med] "Evidence based medine" -congressional contact list
>
>I hope many parents listened to the words uttered by our president 
>last night and his plans for how to determine who gets medical care 
>and what kind of care they will receive.  The part that should worry 
>all parents of rare special needs kids is when the President said 
>"medical decisions will be based on EVIDENCE based medicine"  he 
>said those very words- that means that our kids get nothing but 
>palliative care b/c as we all KNOW from our doctors across this 
>great nation, the "evidence" is that our kiddo's are "incompatible 
>with life" and will die anyway ....sends shivers down my 
>spine.  This is not new in socialized medicine rather it is the "norm."
>
>Not that it matters much but I am a practicing attorney and I do 
>have some insights into where this is headed.  The words used by our 
>leaders do have legal meaning to us.
>
>Think about all the services you get for your kid now from regional 
>centers etc. (speech, OT, PT, respite etc.)  That will likely be 
>taken away as care is rationed for kids where the EVIDENCE is that 
>they will live and might even thrive.  Have any of your kids 
>received any surgeries so far in their lives?  Think about it.  Are 
>you ready to let a bureaucrat dictate IF your child can ever have 
>another necessary surgery?
>
>When something IS done to help fix our health care we better stand 
>up and have a voice. It is obvious that we do NOT have such a voice 
>at present.
>
>We have to fight for our kids and get involved. Please call your 
>representatives and these other important people in DC who can stop 
>this unnecessary "rush" to socialize health care that -at present- 
>will be bad for our kids.  We need to be considered and counted 
>before drastic changes are made that will forever effect our 
>wonderful and valuable children.
>
>If you want to express your opinion too, here is a list of key 
>players involved and how to contact them.
>The White House: (202) 456-1111 or send an e-mail at 
>www.whitehouse.gov/contact/
>House Speaker Nancy Pelosi, D-Calif.: (202) 225-4965 or e-mail her 
>at AmericanVoices@xxxxxxxxxxxxxx
>House Minority Leader John Boehner, R-Ohio: (202) 225-6205 or e-mail 
>him at AsktheLeader@xxxxxxxxxxxxxx
>Senate Majority Leader Harry Reid, D-Nev.: (202) 224-3542 or send an 
>e-mail at www.reid.senate.gov/contact/
>Senate Minority Leader Mitch McConnell, R-Ky.: (202) 224-2541 or 
>send an e-mail at www.mcconnell.senate.gov/contact_form.cfm
>Rep. Henry Waxman, D-Calif., chairman of the House Energy and 
>Commerce Committee, which canceled its vote this week on health care 
>legislation because there was not enough support : (202) 225-3976 or 
>send an e-mail at www.waxman.house.gov/contact/
>Rep. Joe Barton, R-Texas, ranking member on the House Energy and 
>Commerce Committee: (202) 225-2002 or send an e-mail at 
>www.joebarton.house.gov/contactjoe.aspx?Type=Contact
>Sen. Christopher Dodd, D-Conn., member of the Senate Health, 
>Education, Labor and Pensions Committee, which passed its health 
>care bill last week: (202) 224-2823 or send an e-mail at 
>www.dodd.senate.gov/index.php?q=node/3128
>Sen. Michael Enzi, ranking member on the Senate Health, Education, 
>Labor and Pensions Committee: (202) 224-3424 or send an e-mail at 
>www.enzi.senate.gov/public/index.cfm?FuseAction=ContactInformation.EmailSenatorEnzi
> 
>
>Sen. Max Baucus, D-Mont., chairman of the Senate Finance Committee, 
>which is still working on its version of a health care bill: (202) 
>224-2651 or send an e-mail at 
>www.baucus.senate.gov/contact/emailForm.cfm?subj=issue
>Sen. Charles Grassley, R-Iowa, ranking member on the Senate Finance 
>Committee: (202) 224-3744 or send an e-mail at 
>www.grassley.senate.gov/contact.cfm
>Rep. Charles Rangel, D-N.Y. chairman of the House Ways and Means 
>Committee, which passed its health care bill last week: (202) 
>225-4365 or send an e-mail at www.forms.house.gov/rangel/forms/contact.shtml
>Rep. Dave Camp, R-Mich., ranking member on the House Ways and Means 
>Committee: (202) 225-3561 or send an e-mail at www.camp.house.gov/contact/
>Rep. George Miller, D-Calif., chairman of the House Education and 
>Labor Committee, which passed its health care bill last week: (202) 
>225-2095 or send an e-mail at 
>www.georgemiller.house.gov/contactus/2007/08/post_1.html
>Rep. Tom Price, R-Ga., ranking member on the Health, Employment, 
>Labor and Pensions Subcommittee: (202) 225-4501 or send an e-mail at 
>www.tom.house.gov/html/contact_form_email.cfm
>Phone calls do matter- you CAN make a difference.
>
>Audry
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>
>
>
>No virus found in this incoming message.
>Checked by AVG - www.avg.com
>Version: 8.5.392 / Virus Database: 270.13.26/2257 - Release Date: 
>07/23/09 18:00:00



Jocelyn,  wife to Frank,  Mother to Ian, Gillian and Susan, Nanna to 
Carly 22  Mathew 20,  Ashleigh 19, Alex 17,  and Tess  (Trisomy 18,) 
age 12 yrs,  & Benny the Maltese, plus one amazing DIL and two 
amusing SIL's of whom I'm very fond, and their extended family who 
are too many to list here.   

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

Other related posts: