[tri-med] Re: Emily update

Hurrah for Emily!!!
Hope all goes well with the cardiology follow-up and the possibility  
of coming off Ritalin. What's your feeling on that? How has her ADD  
been?

Loren (wife to Kraig, mom to Keren Elyse, T18, 4 years tomorrow!!!  
(9/27/02), and Clarissa Joanne, our roaring one-year-old (7/17/05) )
Southeast Michigan
http://webpages.eng.wayne.edu/~ad6075


On Sep 25, 2006, at 5:41 AM, Jennifer Johns wrote:

> HI everyone:  Just wanted to share a quick update about Emily.  She  
> has had a rough summer with behaviors and sleep but I think we  
> finally have it straightened out with correct meds.  She did have  
> an EKG in peds office and it should sinus tachycardia (rapid  
> heartbeat) AND incomplete right bundle branch block.  We were  
> scheduled to see cardiology on Oct. 4 anyway for routine follow-up  
> so we will get more info then.  Our ped told us it's possible she  
> may have to come off her stimulant meds (Ritalin) due to the  
> problem.  Anyone familiar with this one???
>
> Also, I am excited to say WE TOOK OUT HER FEEDING TUBE ON FRIDAY.   
> She stopped using it back in June completely...(before that we only  
> used during days at school for about 3 months)  Ped Surgery said  
> the criteria for removing is that she not use it at all for feeds  
> or meds for 2-3 months and continue to gain weight.  WELL...  She  
> actually grew 2 inches this summer and gained nearly 6 pounds.   
> That would have taken 3 years to do before.  We are so proud of her  
> and excited.  It looks so strange to see her standing waiting for a  
> bath (naked) and have NO feeding tube (Mic-Key) sticking out. She  
> is still eating soft foods but continues to improve and add new  
> foods often.
>
> I know this was a short update...but very overdue.  I will add more  
> later when time permits.
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>



                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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