-----Original Message----- >From: Jennifer Johns <kjehjohns@xxxxxxxxxxxxx> > >Also, I am excited to say WE TOOK OUT HER FEEDING TUBE ON FRIDAY. She stopped >using it back in June completely...(before that we only used during days at >school for about 3 months) Ped Surgery said the criteria for removing is that >she not use it at all for feeds or meds for 2-3 months and continue to gain >weight. WELL... She actually grew 2 inches this summer and gained nearly 6 >pounds. That would have taken 3 years to do before. We are so proud of her >and excited. It looks so strange to see her standing waiting for a bath >(naked) and have NO feeding tube (Mic-Key) sticking out. She is still eating >soft foods but continues to improve and add new foods often. Jennifer, This is awesome. Do you have a site for recent Emily pics? Chris wife to Pat, mama to Dalton 15yo, Darby 11yo, McKensie 10yo, and Mari 5yo (full T18, dob 8/24/01 & The only one who always likes me....unless I'm trying to wipe her nose) Tipp City, OH USA http://pg.photos.yahoo.com/ph/misstippcity/my_photos http://home.earthlink.net/~loganfamily/id1.html http://www.benotafraid.net/story.asp?id=38 http://web.coehs.siu.edu/Grants/TRIS/ Building ___ooOOoo__ Rainbows www.trisomyonline.org Families Helping Families On-line