[tri-med] Re: Elanor is in the hospital again!

Hey there Jennifer:

I've been out of town and away from email but I just saw your
email about Elanor.
First of all I hope she's feeling better by the time you read
this. Krissy has had
her trach since 3 months old. If you would like to talk, email me
offlist and I'll
send my number.

Trachs are a lot easier to deal with than you think they might
be. I know you've
dealt with it before but really, I feel Krissy is so much safer
because of the trach
than without it.

All the best,
Terre
=20
Mom to Kevin - 21, Keith - 18, Kenny - 15, Korey - 13, and
precious
Krissy (better known as Princess Krissy!) (T18) - 7 years - with
a smile that lights up the world!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Terre Krotzer
terre@xxxxxxxxxxxx
=20
" There are two ways of spreading light; to be the candle or the
mirror that reflects it."=20
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Show your family how much you care...
Get your Will and Living Will in place today...=20
www.krotzers.com


-----Original Message-----
From: tri-med-bounce@xxxxxxxxxxxxx
[mailto:tri-med-bounce@xxxxxxxxxxxxx] On Behalf Of Jennifer
Vanderbeek
Sent: Monday, March 17, 2008 8:04 AM
To: tri-med@xxxxxxxxxxxxx
Subject: [tri-med] Elanor is in the hospital again!


Well, we are back in PICU.  Elanor has the flu, and it really
knocked her down.  She is intubated, and we had a bad scare on
Saturday.  She is doing better now, but they are talking about
putting in a trach so we can suction her better when she gets
sick, and so we can hook the bi-pap directly to the trach at
night.  That way we can be much more consistent with it.  Any
advice or thoughts on getting a trach?  She had one after her
heart surgery way back in 2001, but she had to be hooked to a
vent (they nicked a nerve during surgery which paralyzed one side
of her diaphragm).  She only needed it for about 5 or 6 months,
then they closed it up.  She won't need the vent now, but it's
still scary!

If you want to read a more detailed account of our weekend
trials, go to Elanor's Caringbridge site:

http://www.caringbridge.org/visit/elanoranne=20

It seems a lot of us are in or going to be in the hospital these
days.  My prayers are being sent your way!

Jennifer Vanderbeek
Boise, Idaho
mom to Arwen (10); Elanor (8), Trisomy 18; caregiver to Joe (29),
Cerebral Palsey; and wife to Andrew

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

Internal Virus Database is out-of-date.
Checked by AVG Free Edition.=20
Version: 7.5.516 / Virus Database: 269.21.6/1317 - Release Date:
3/7/2008 8:15 AM

Internal Virus Database is out-of-date.
Checked by AVG Free Edition.=20
Version: 7.5.516 / Virus Database: 269.21.6/1317 - Release Date:
3/7/2008 8:15 AM
=20

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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