[tri-med] Re: Elanor in the hospital too!

Will be keeping Elanor in our prayers.  Praying EVERYONE gets home soon.  
Nothing like your own bed :) 


Tracy Verheyen Mom to Cody (Trisomy 9p) 

----- Original Message ----- 
From: "Jennifer Vanderbeek" <phil46@xxxxxxxxxxxx> 
To: tri-med@xxxxxxxxxxxxx 
Sent: Saturday, March 28, 2009 12:41:16 PM GMT -05:00 US/Canada Eastern 
Subject: [tri-med] Elanor in the hospital too! 

I thought I'd get in on the theme, too!  Elanor has been in the hospital 
with a virus+bacterial pneumonia (that developed after we were there for a 
day or two).  She is feeling much much better and should be coming home 
today. However, we went in on the day we were supposed to travel to Salt 
Lake City to have her VEPTR expanded.  She has grown so much, and the curve 
of her spine has gotten so bad.  We were really looking forward to getting 
her "stretched" so she could handle the usual spring cold that goes around. 
Apparently we were a little too late!  She would've been out sooner, but 
they were concerned with her CO2 levels being a little too high.  She 
chronically has high levels, but they are looking at giving her a backup 
rate on her home vent to help with it.  Pray for our safe return home, and 
we will be praying for the other kiddos on the list to get home too!  Now, 
off to sanitize her room...  :) 


Jennifer Vanderbeek 
Boise, ID 
Mom to Arwen, 11; Elanor, 9 (T18); caregiver to Joe, 29 (CP), and J.D., 27; 
and wife to Andrew. 



-----Original Message----- 
From: tri-med-bounce@xxxxxxxxxxxxx [mailto:tri-med-bounce@xxxxxxxxxxxxx] On 
Behalf Of Janet King 
Sent: Friday, March 27, 2009 5:48 PM 
To: tri-med@xxxxxxxxxxxxx 
Subject: [tri-med] A Hannah in the hospital 

Not our Hannah but one of her online "buddies" also name Hannah. She has 
been there since about the 12th dealing with other lung issues along with 
fevers. A few days ago RSV was added to the mix. She has been slowly getting 
worse and we are getting worried. I know her parents are too. Please pray 
for them, that they get through this ok. 
  

Janet King 

Mom to Hannah - Trisomy 14 Mosaic Partial, CP, Scoliosis and a few other 
things 

  



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                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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