[tri-med] Re: EFA

>Would EFA's be beneficial for someone as old as Elanor?  

Absolutely!  Philina didn't start getting it until she was
at least 16 or 17 (after I joined this listserv).  

>children with T-18 often have poor myelination of the brain. 
>Myelin is the sheath that covers the nerves. Its the myelin 
>that conducts the messages down the nerves. Lack of myelin, 
>or more accurately the loss of myelin is what you see in
>Multiple Sclerosis. If you are missing myelin then the 
>message through gets disrupted. 

>I believe (and its my own personal belief) that most if not 
>all of our kids suffer from praxis in some form or another 
>and that the effects of praxis can be taken as retardation 
>(if you cant get the message from your brain to your muscles 
>then you can't differentiate between whether the brain can 
>or can't) I am NOT saying that our kids are not cognitively 
>disabled - just that they may seem more so than they are.

6p too.  Or at least it is known for a fact that Miss P's 
myelin sheath for her facial nerve was totally missing, 
when Dr Pransky went in for her ear canalplasty surgery.
Can't really say just how it looks today.  Dr P says, "Maybe
you can find someone with bigger testicles then me, but I'm
not going back in there."

>Personally we use Efalex, which I understand is not 
>available in the US anymore. 

I may just possess the very last bottles of this in the country.
Think I'm down to about 3 now, scored as dead stock off of eBay.

>I believe that EFA's encourage the myelination of the nerves. 
>They cannot test specifically to see if thats the case in people 
>(because it would mean taking brain samples which you can't 
>ethically do) but testing in mice says yes it does. And outcome 
>research says yes too.  Thats Jacqueline Stordy's work - she has 
>shown great benefits in EFA's with conditions such as oral motor 
>dyspraxia and ADD, ADDHD. All conditions associated with poor 
>myelination.

Since Philina started on EFA her verbalizations are notably lower 
pitched when taking it.  This is a GOOD thing.  She regained her 
ability to make the guttural "D" sound, something she'd lost at 
age 4 when we had her adenoids removed.  And she has also added 
the "L" sound, something she had never been able to make before 
the EFA.

Fawna, mom to Thom & Rhonda, Lara and
Philina 20 (PT6p & Moya Moya Syndrome),
wife of Doug, 12 >^..^<, 3 llamas, 2 tortoises,
& 1 turtle, Philina's Pharm Bengal Cattery
Escondido, CA., USA
http://home.mindspring.com/~fawna33/index.html
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