[tri-med] Re: Dom's Neuro Appt & Potential Local Get Togethers

Nan, any other locals, (& Karen too)

> Dom has a neuro appointment this week. Could I take a copy
> of your letter about the testing to show the doc?

Who's he seeing?  What day, and when?  Miss P is reschedualed
for rehab clinic on the 6th at 8AM....(UGH rush hour on the 15).
Of course since Lewis baled on rehab, the new rehab clinic is
in the main building with someone I've never even heard of, not
the neuro office like the last appt.  But if you're around at
lunch time again...

> Last summer at the conference, Dom asked the consulting
> neuro about how he sometimes spaces out and is not able to process
> information, the doc told him that it was something that was not
> really related to his tri 18, but more of a learning disability
> issue. Oh well.

> But without other kids with mosaic T-18 to compare to there is no
> way that anyone can say it is or it isn't related to the T-18.

Also need to talk to you about a couple of list members who will
be in town this Dec.  I don't have a date yet for Mary (Ryan's mom),
who will actually be in Escondido, but when I do, we should plan
something.

However, The Deep Lurker we sent the Shiver tape to, will be in San
Diego next weekend for a conference.  We're taking her out to dinner
Friday evening, and I'm planning to meet with her again Sunday morning
to specifically discuss subjects similar to Dom's scheduled workshop
part at next summer's conference.  She's looking for more warm bodies
not really satisfied with, "Oh well".  If you're available, and at all
interested, give me a holler.  That goes for any other locals too.

> In general it is thought that US doctors are more ready to diagnosis
> things like OCD, Bi-Polar, ADD, depression etc in young children and
> medicate than our doctors are. That's not to say that either is right
> or wrong (personally I think our doctors are too slow to label at times)
> just cultural differences again. And a typical example is Alex - he
> meets all the criteria for an ADD diagnosis in the US - but he wont get
> it here. Not from psych anyway. It will stay as an "attention problem" -
> at least for now.

Thanks for the confirmation on that Karen!!!  Believe it or not, psychic
Fran told me that as part of last July's reading...LOL  Man #3 of 3 she's
described so far, is a neurologist turned naturopath, who was partially
trained in Australia.  But I'm not due to meet that one until May or June
of next year.... Yep, she said "Australia is way ahead of the US in this
regard".  (Oh, already met #1 last Feb, and I'm suppose to be meeting #2
in December...;o)


> So feel free to share the info and if the doctor is interested I can
> certainly put him in touch with Alex's neuropsych via email. When I get
> the formal report (will be another 2 weeks away probably) I will send you
> a copy for future reference. Sometimes that can come in handy - just like
> having a copy of Morgan's hearing tests here does :-))

If it's the doctor I hope it is, that's a given......

> One day we WILL have a proper data base for all this sort of stuff - I
> promise!!!!!

And so do I....come meet the lurker, and find out more!!!

Fawna Lockwood , mom of Thom 24, Lara 22,
Philina 19 (PT6p & Moya Moya Syndrome),
wife of Douglas, 7 =^..^='s, Bob & Jo the
African Leopard Tortoises, Dribble the
Musk Turtle, Paula, Chica & Carmelita the
llamas. Philina's Pharm Bengal Cattery,
Escondido, California, USA
http://members.aol.com/sorgl/famtoc4.htm
http://www.chromodisorder.org/famtoc4.htm
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                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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