The recommendations and discussion paper regarding genetic
discrimination are being launched today. Unfortunately I will not be able to
go to the launch :-((
I did have great hopes for these changes to the law here - but sadly I think
that a peak genetic body (here in Australia) will prevail in their lobbying.
They believe that children with trisomy conditions do not reflect the "real"
situation within the genetic community (they think that I and SOFT are silly
in trying to treat our kids - even asked me directly why I fought for Alex
when he "obviously had no quality of life - this from our supposed "support
organisation") and as a result that our submission will be ignored - say a
prayer for us, and for our children, that this hasn't happened. And if it
has - mmmm have you ever seen Karen mad??
oh Karen is that what AGSA said to you??? They are really awful!!!! Did
you hear anything about the launch there was no news of it in the media? I
have been sick so haven't been real compos mentos.
"Life is like a box of chocolates, you never know what you're gonna get!"
Forrest Gump's mother.
"Don't worry about the world coming to an end today. It's already tomorrow
in Australia"
Charles Schultz.
Tracey RN/CM <///><, Mum to Jennie 15, Louise T18 (in heaven), Jono 11,
Jesse 8, Jimmy the angel dog, Millie the magnificent (Dogus Ecstaticus),
Pippa the perfect (puppius perfecticus) and most grateful wife to David the
devoted.
Bobs Farm, NSW, Australia
Homepage - www.geocities.com/cuddlefishtoo/index.html
Our God Reigns
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Building ___ooOOoo__ Rainbows
www.trisomyonline.org
Families Helping Families On-line