Please don't anyone take this the wrong way. When I start on a talking spree my fingers work before the brain. Here it goes.... So many things I took for granted. For example, and this is where I say don't take what I am saying as judging anyone, I always thought that prochoice / prolife ended with the 1st trimester. I really did think that you found out you were pregnant made your decision to carry to term or terminate. NEVER in my wildest dreams did it ever occur to me that it actually extended to living human beings that were not full term OR living children at full term. I grew up in a small town area and even though I lived in bigger city areas for short amount of times I am amazed at how little I am educated on. I SUPPORT everyone on how they decide to handle their own lives. I still don't feel as though I can tell someone else what to do until I walk a mile in their shoes. NO ONE enters into their decision lightly. To have the strength to live through what we have been through is amazing. Anyway, I found out 2 weeks after my son Logan was born that he had t-13, mosaic. They suppected through an ultrasound that he had it the day before he was born. However, there wasn't enough time to test his chromosomes before his birth. I personally feel blessed that it happened that way. But to sit and say how I would have handled it if I would have known before he born I can not honestly. But once he was born and I fell in love with him and vice versa that is how he is still alive. So back to my point. I really thought that once he was alive that he was to be treated like any other human being. I really wasn't prepared for the idea that I could still terminate / take his life due to the syndrome. And again then when he coded so many times and they pushed me to pull the plug. I really thought that like all children it was illegal to take his life, ie if I put him in a trash dumpster and "allow nature to take it's course". I really thought once he was considered full term and out of the NICU that his life was as valuable as the rest of the children in the world. I was wrong. My comments are to "those that chose to allow your child to have a chance" and again don't take this wrong. Be prepared to have to deal with this. Have a script from your DR stating that your child is a full code. If you happen to go to the ER and they won't let you in with your child find a way to get in. The time that Logan went I thank God now, but the home nurse overstepped his boundry by jumping in the ambulance with my son instead of me. That will never happen again. I will always ride with Logan in the ambulance. Find a way to get into the ER and make the DR's hear you. The hospital that this incident happen at knows that they have a law suit on their hands. I already told them that if Logan would ever come there again it would only be to stablize him until they can get him to the childrens hospital. That is the only hospital we will deal with now. They already know from when I called in a placed a formal complaint that it will be beyond ugly if they don't let me back with him. I was under the impression that a life is a life. In America you can not allow someone to pass if they have fatal disease like oh, cancer or AIDS. The only way this can be done is if there is a living will. I just can't get over the fact that I have a living will on Logan and that is he is a full code and it still can be ignored. I don't have the final say even now that he is 9 months old. This blows my mind!!!!!!! Logan is amazing, and a true miracle!! He is spoon feeding, rolling over, smiling, bottle feeding, kicking and moving the arms and legs. All of which they stated to me originally that he would never do. They told me he would be a veggie if he survived his birth. On the outside he looks like a 2 month old baby that requires O2. When he is naked you can see the scars from the operations, colostomy's and gtube. I would really encourage those of you that are expecting to email me for his pictures. By the way the NICU Dr that told me that I was being selfish, cruel, and causing him to suffer saw him last Friday afternoon. For The 1st time since he left the NICU. Logan has a few birth defect that are only 1% of the poplulation. She finally admitting (thankfully) that he was doing the 1% of the population in a wonderful way. I really hope she thinks twice when another trisomy baby comes through to send them to me to talk to. I won't sugar coat things but I will say how much he has changed my life for the better. Anyone that is expecting a trisomy baby please email me. I would be happy to talk with you on all the positives and negatives. Thank you to anyone that listened. PS There was an article in the local paper about a trisomy 22 child right after Logan was born. She was in Logan's room the last time she was in the hospital. She really didn't move or do much. However, her poor mother had 5 other children and basically a single mom like myself. Once she got to know me the second I walked into the room she fussed until I went over to talk to her, fix her tv - channels, and caress her head. I would have loved to take her home with me. She was so special and sweet. I miss her. Although Logan wasn't very happy with the attention I was giving her. Tina Mandy wrote: Tina Arbogast wrote: >>I finally (on crutches with a broken ankle) went in a different enterance >>that went right into the er itself. I screamed at the top of my lungs to let >>me see my son.<< ((((((Tina)))))) big hugs Mandy,mum to Matthew 9,Charlotte 8 , Gareth (t18 ^i^ Nov 14th'99) Dominic (Cystic Hygroma ^i^ July 23rd '00) and soon to be mum of our "special little someone" (England UK) http://www.geocities.com/baby2angels2000 "Who then can so softly bind up the wound of another as he who has felt the same wound" - Thomas Jefferson --------------------------------- Do You Yahoo!? Yahoo! Finance - Get real-time stock quotes Building ___ooOOoo__ Rainbows www.trisomyonline.org Families Helping Families On-line --------------------------------- Do You Yahoo!? Yahoo! Finance - Get real-time stock quotes Building ___ooOOoo__ Rainbows www.trisomyonline.org Families Helping Families On-line