[tri-med] Re: Do you think this suspicious?

hubby job transfers...
we married and lived in dallas for 3 years, then memphis for 6 years and the 
big kids were born there.  on to indianapolis for 2 years and charleston for 
9 years and kam was born there.  musc was very good to kam except for the 
genetics dept.
we have been in colorado for the last 7 years and i think this will be the 
retirement place.
bill is from michigan and i am from indiana so we have always lived away 
from family and that has suited us just fine.
bill's parents are now looking for a retirement home close to us in boulder 
and that will be great.  i am the oldest and my folks had me when they were 
young so they are in pretty goos shape.
jude, mom to derek-22, kelsey-20 and kameron-11- full trisomy 18
golden (soon to be boulder), colorado
www.judewolpert.com
http://home.comcast.net/~jfwolpert2/wsb/html/view.cgi-photos.html-.html


----- Original Message ----- 
From: "D McHugh" <dori_m@xxxxxxxxxxx>
To: <tri-med@xxxxxxxxxxxxx>
Sent: Saturday, September 20, 2008 5:14 PM
Subject: [tri-med] Re: Do you think this suspicious?


> Jude,
>
> Yes we are in the Charleston area.  All of these children were born at 
> Medical University of South Carolina (best medical facility in the area) 
> Prior to Bryson being born, we only knew about the cleft lip and possible 
> cleft palate so my daughter's prenatal care was transferred to MUSC 
> because he was at risk of feeding problems after birth.  It wasn't until 
> after he was born that he was diagnosed through karyotyping that he had 
> Full T13  Same with this young lady down the street.  She was 32 weeks 
> gestation.  She had preeclampsia and had an infection and was transferred 
> to MUSC for high risk care.  After the baby was born and before the mother 
> took seriously ill, she got to hold her baby in her arms when she passed. 
> The infection was pretty bad and spread to her kidneys and lungs and she 
> had to be placed on a vent and strong antibiotics.  They almost lost the 
> mother 3 separate times.  It has been a week frought with suffering for 
> this family.
>
> We that live here in this neighborhood are all very concerned as these are 
> our children, the next generation that are having these rare disorders 
> with their babies.  Several other of "our kids" from the neighborhood also 
> are infertile though they have been trying.  My daughter and son-in-law 
> (also from the neighborhood) have been trying to get pregnant for two 
> years with no success.  This again is why I asked if it's something 
> possibly environmental.  Many of us concerned have lived here from 13-16 
> years.  Many of us moved here when our children were pre-teen.
>
> Nonetheless, I'm hoping that at least DHEC (Dept. of Health & 
> Environmental Control) should have the necessary stats on the health of 
> newborns, stillbirths etc in this community.
>
> What brought you to South Carolina Jude?  And then to Boulder?

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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