[tri-med] Re: Do you think this suspicious?

Jude,
 
Yes we are in the Charleston area.  All of these children were born at Medical 
University of South Carolina (best medical facility in the area)  Prior to 
Bryson being born, we only knew about the cleft lip and possible cleft palate 
so my daughter's prenatal care was transferred to MUSC because he was at risk 
of feeding problems after birth.  It wasn't until after he was born that he was 
diagnosed through karyotyping that he had Full T13  Same with this young lady 
down the street.  She was 32 weeks gestation.  She had preeclampsia and had an 
infection and was transferred to MUSC for high risk care.  After the baby was 
born and before the mother took seriously ill, she got to hold her baby in her 
arms when she passed.  The infection was pretty bad and spread to her kidneys 
and lungs and she had to be placed on a vent and strong antibiotics.  They 
almost lost the mother 3 separate times.  It has been a week frought with 
suffering for this family.  
 
We that live here in this neighborhood are all very concerned as these are our 
children, the next generation that are having these rare disorders with their 
babies.  Several other of "our kids" from the neighborhood also are infertile 
though they have been trying.  My daughter and son-in-law (also from the 
neighborhood) have been trying to get pregnant for two years with no success.  
This again is why I asked if it's something possibly environmental.  Many of us 
concerned have lived here from 13-16 years.  Many of us moved here when our 
children were pre-teen.
 
Nonetheless, I'm hoping that at least DHEC (Dept. of Health & Environmental 
Control) should have the necessary stats on the health of newborns, stillbirths 
etc in this community.
 
What brought you to South Carolina Jude?  And then to Boulder?
 
Doretta
Grandma to Bryson Nault 
Full T13-Born 6-9-06> From: jfwolpert@xxxxxxxxxxx> To: tri-med@xxxxxxxxxxxxx> 
Subject: [tri-med] Re: Do you think this suspicious?> Date: Fri, 19 Sep 2008 
17:28:22 -0600> > are you in south carolina? kam was born in charleston with 
full t18 in > 1997. the reason we got was most likely advanced maternal age. 
guess that > is not the case for these young women. good luck in finding 
answers.> jude, mom to derek-22, kelsey-20 and kameron-11- full trisomy 18> 
golden (soon to be boulder), colorado> www.judewolpert.com> 
http://home.comcast.net/~jfwolpert2/wsb/html/view.cgi-photos.html-.html> > 
----- Original Message ----- > From: "D McHugh" <dori_m@xxxxxxxxxxx>> To: 
<tri-med@xxxxxxxxxxxxx>> Sent: Friday, September 19, 2008 5:11 PM> Subject: 
[tri-med] Do you think this suspicious?> > > > Just want to pose this to you 
all to see if you find this merely > > coincidental or suspicious?> >> > My 
grandson was born with Full T-13 2 years 3 months ago. My daughter > > lived 
here with us during her first trimester. (hubby in military in boot > > camp at 
the time) Just last week, a young lady just a few doors down from > > where we 
live had a baby girl that only lived 2 hours and she had T13. > > Again, 
pregnancy seemed very normal and didn't know until the baby was > > born that 
she had T13. And 3 years ago, my son had a friend (who also > > lived less than 
half a mile from here had a baby girl born with T-13...she > > only survived a 
few days) This is very scary to me when some thing that > > is a supposedly a 
"rare" chromosomal disorder happened to 3 young women & > > men (in their late 
teens to mid twenties) in such a close radius.> >> > I want to know if you all 
think whether is a weird coincedence or is there > > something very suspect 
here? I've already sent off a letter to the SC > > Department of Health and 
Environmental Control hoping that we can get some > > answers or at least an 
investigation. Is it the water, something with the > > construction of our 
houses? What is it? My neighbor is wanting some > > answers too.> >> > This is 
so very sad. Tomorrow is Gabrielle's funeral and I will go to pay > > my 
respects. Please keep her and her family in your thoughts and prayers.> >> > 
Doretta McHugh> > Grandma to Bryson Nault> > Born June 9, 2006 Building 
___ooOOoo__ > > Rainbowswww.trisomyonline.orgFamilies Helping Families On-line> 
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On-line> >> > > > Building ___ooOOoo__ Rainbows> www.trisomyonline.org> 
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