Thanks, of course I'm hoping she'll jump on the list serv... We'll see, ThereseAnn On 12/20/05 8:39 AM, "Fawna" <fawna33@xxxxxxxxxxxxxx> wrote: >>> I've got a mom in Florida looking to connect with a "Partial Trisomy 8" >>> parent. Her child is 2 1/2 yr old boy. I've encouraged her to join the list, >>> but thought I'd get her info to any other t8 families we have out here... > >> Any others??? > > ThereseAnn, > > The only partial 8 (non mosaic) that comes to my mind is kieran PT8p & XYY. > Marni hasn't written in years now, but I'll pop her off a note and see if the > addy i have for her is still good...and if he has a website to link. > > > > > Fawna, mom to Philina 22 yrs (PT6p & Moya Moya Syndrome) > Research Coordinator: Tracking Rare Incidence Syndromes > (TRIS) project - We are currently enrolling all varieties of > Trisomy 13 & 18, living & deceased, for the pilot phase. > To include your child's data and help update the medical > literature please see: http://web.coehs.siu.edu/Grants/TRIS/ > And to add a link for your Trisomy child's personal web page > please see: http://www.livingwithtrisomy.org/ > Building ___ooOOoo__ Rainbows > www.trisomyonline.org > Families Helping Families On-line > Building ___ooOOoo__ Rainbows www.trisomyonline.org Families Helping Families On-line