[tri-med] Re: Do tri 13/18 kids experience joy?

HI Ruth, 
I certainly remember what a joy Matthew was. Especially, I remember the effect 
of his life on his grandparents. 

Thanks and hope all is well with you. 

Barb



> From: t18mom@xxxxxxx
> To: tri-med@xxxxxxxxxxxxx
> Subject: [tri-med] Re: Do tri 13/18 kids experience joy?
> Date: Tue, 26 Aug 2008 18:38:15 -0700
> 
> Comments on joy? Well, let's see....
> 
> Matthew was the most smiling, laughing, playful human being I have ever
> met!!
> 
> Man, if I could have that much joy all the time, I would bottle it and sell
> it!
> 
> Hope this helps!
> 
> 
> Ruth, wife to Rudy, mom to Brendon (24), Scott (20), Joshua (17), Matthew
> (09/13/01-10/24/06), Rudy (3 1/2) & Alyssa (18 mo.)
> 
> http://members.cox.net/t18mom/Matthew%20Web.shtml
> 
> Character cannot be developed in ease and quiet. Only through experience of
> trial and suffering can the soul be strengthened, ambition inspired, and
> success achieved. ~Hellen Keller
> 
> 
> 
> 
> -----Original Message-----
> From: tri-med-bounce@xxxxxxxxxxxxx [mailto:tri-med-bounce@xxxxxxxxxxxxx] On
> Behalf Of Barbara Farlow
> Sent: Tuesday, August 26, 2008 6:10 PM
> To: tri med lists; triwings
> Subject: [tri-med] Do tri 13/18 kids experience joy?
> 
> Hello friends in trisomy,
> In communication recently with an experienced neonatologist, I was quite
> surprised to read that he believed that children with tri 13/18 were not
> worth saving because they were "not sentient", which means that they are not
> capable of experiencing joy or interacting with their surroundings. 
> 
> Wow. This is certainly not what I saw when I did research before my daughter
> was born. Sure, it is a tough road, with a lot of sacrifice. But as for not
> experiencing joy....
> 
> I sent him some videos; a child with tri 13 and mieko videos (I made special
> mention of the one aptly named, "giggles")
> I seriously wonder if loving parents see something as clear as day that
> physicians and the medical system are blind to. 
> 
> Does anyone have any comments about this? 
> 
> By the way, the ironman just finished his 11th race to increase awareness.
> He is getting more and more press each time. It is pretty exciting. 
> 
> www.ironmanforkids.com
> 
> Barb  (mom to Annie)
> 
> _________________________________________________________________
> 
> 
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
> 
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
> 

_________________________________________________________________


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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