[tri-med] Re: Do tri 13/18 kids experience joy?

Comments on joy? Well, let's see....

Matthew was the most smiling, laughing, playful human being I have ever
met!!

Man, if I could have that much joy all the time, I would bottle it and sell
it!

Hope this helps!


Ruth, wife to Rudy, mom to Brendon (24), Scott (20), Joshua (17), Matthew
(09/13/01-10/24/06), Rudy (3 1/2) & Alyssa (18 mo.)

http://members.cox.net/t18mom/Matthew%20Web.shtml

Character cannot be developed in ease and quiet. Only through experience of
trial and suffering can the soul be strengthened, ambition inspired, and
success achieved. ~Hellen Keller




-----Original Message-----
From: tri-med-bounce@xxxxxxxxxxxxx [mailto:tri-med-bounce@xxxxxxxxxxxxx] On
Behalf Of Barbara Farlow
Sent: Tuesday, August 26, 2008 6:10 PM
To: tri med lists; triwings
Subject: [tri-med] Do tri 13/18 kids experience joy?

Hello friends in trisomy,
In communication recently with an experienced neonatologist, I was quite
surprised to read that he believed that children with tri 13/18 were not
worth saving because they were "not sentient", which means that they are not
capable of experiencing joy or interacting with their surroundings. 

Wow. This is certainly not what I saw when I did research before my daughter
was born. Sure, it is a tough road, with a lot of sacrifice. But as for not
experiencing joy....

I sent him some videos; a child with tri 13 and mieko videos (I made special
mention of the one aptly named, "giggles")
I seriously wonder if loving parents see something as clear as day that
physicians and the medical system are blind to. 

Does anyone have any comments about this? 

By the way, the ironman just finished his 11th race to increase awareness.
He is getting more and more press each time. It is pretty exciting. 

www.ironmanforkids.com

Barb  (mom to Annie)

_________________________________________________________________


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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