[tri-med] Re: Do tri 13/18 kids experience joy?

The doctor obviously spoke with out first hand knowledge!

-----Original Message-----
From: tri-med-bounce@xxxxxxxxxxxxx [mailto:tri-med-bounce@xxxxxxxxxxxxx]
On Behalf Of Barbara Farlow
Sent: 08/26/2008 8:10 PM
To: tri med lists; triwings
Subject: [tri-med] Do tri 13/18 kids experience joy?

Hello friends in trisomy,
In communication recently with an experienced neonatologist, I was quite
surprised to read that he believed that children with tri 13/18 were not
worth saving because they were "not sentient", which means that they are
not capable of experiencing joy or interacting with their surroundings. 

Wow. This is certainly not what I saw when I did research before my
daughter was born. Sure, it is a tough road, with a lot of sacrifice.
But as for not experiencing joy....

I sent him some videos; a child with tri 13 and mieko videos (I made
special mention of the one aptly named, "giggles")
I seriously wonder if loving parents see something as clear as day that
physicians and the medical system are blind to. 

Does anyone have any comments about this? 

By the way, the ironman just finished his 11th race to increase
awareness. He is getting more and more press each time. It is pretty
exciting. 

www.ironmanforkids.com

Barb  (mom to Annie)

_________________________________________________________________


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line



                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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