[tri-med] Re: Digestion

I have a question for all those who have had issues with doctors and
hospitals and digestion.  I will try and make this explanation short. =20

My daughter Eleora went to duke in 2003 and had a bunch of studies done =
one
of which was a gastric emptying study they told us there was nothing =
wrong.
For about a year after that she had real issues with projectile vomiting
after she ate a few times a week.  She would stop breathing and turn =
blue it
was really bad. We kept taking her back to the pediatrician and to the =
ER
they kept saying it was reflux they got us an appt back with the Duke GI
people who proceeded to tell me I had an appt. I was never notified of =
and
that she had slow gastric emptying.  We were really upset but relieved =
to
know what the problem was and to get it taken are of.  They also told us =
she
had no reflux. =20

About a month ago after 7 aspirated pneumonias in 7 months we along with =
the
pediatrician decided it was time for a g-tube.  In the routine studies =
to
make sure everything was ok for the tube they found out Eleora had
malrotation of her intestines, Also that her appendix was on the wrong =
side
of her body, and she had bad reflux.  She ended up having a bunch of
surgeries including a Nissan, correction of the malrotation, g-tube,
appendix removed, hernia repair, and new ear tubes. =20

It is starting to become evident that her issues were very likely due to =
the
malrotation and that she has been in pain for a long time.  Before the
surgeries she kept her arms close into her chest and wouldn't reach for
anything now 2 weeks later she is already reaching and happier I think
because the reflux is repaired. I am very upset with Duke and am not =
sure
what to do to insure this kind of thing doesn't happen to any other
families.  We are considering filing a case against them but because =
Eleora
is so severely handicapped I am not sure it can get anywhere what do you
guys think?=20
Thanks Cindy



Live Well, Love Much, Laugh Often!=20
=20
 Would a fly without wings be called a "walk?"=20
=20

-----Original Message-----
From: tri-med-bounce@xxxxxxxxxxxxx [mailto:tri-med-bounce@xxxxxxxxxxxxx] =
On
Behalf Of Jennifer V.
Sent: Monday, May 14, 2007 5:28 PM
To: tri-med@xxxxxxxxxxxxx
Subject: [tri-med] Re: Digestion

i had no idea...  eric doesn't seem to have any problems, but i will=20
remember that!
Jennifer, mom to Arwen, 9; Elanor, 7 (T18); caregiver to Joe 27, and =
Eric,=20
20 (both w/ CP); and wife to Andrew.
Boise, Idaho, USA
----- Original Message -----=20
From: "Richard & Mary" <mrcapp@xxxxxxxxxxxxxxxxxx>
To: <tri-med@xxxxxxxxxxxxx>
Sent: Monday, May 14, 2007 1:25 PM
Subject: [tri-med] Re: Digestion


> Jennifer. FYI Reglan is known to cause seizures.  In most instances it =
is
> not given to people with seizures.  But it is great for increasing
> intestinal motility.
> Mary Capp mom to Michael, ^i^ Richard W partial t-16q deletion 18p wth
> translocation, Hannah and wife to Richard E.
>
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line
>
>=20


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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