[tri-med] Re: Devon's first night :o)

I hope you are sleeping soundly soon!

Rebecca, mom to Kashi (18) and Ruth (full t-13, 
3/25/04), "stepmom" to Josh (33) and Joe's main squeeze



---------- Original Message ----------------------------------
From: "Penny Victor" <pvictor@xxxxxxxxxxxx>
Reply-To: tri-med@xxxxxxxxxxxxx
Date:  Mon, 13 Dec 2004 17:41:18 -0500

>Hi Everyone :o)
> I believe Devon even likes it although he's still kind of 
confused about where his other bed went ;o)
>AND NO left over parts when we put it together :o) I put him to 
bed last night letting him climb up on a step stool to get in...he 
looked around a little trying to decide if he was going to get 
upset and decided he was too tired to get upset :o) I, of course, 
didn't sleep well because I was worried he'd wake up and freak 
out...or try and get out and some how hang himself up in 
it...nothing rational...just worrying :o) He woke up at his 
regular time this AM and was actually very quiet except for a 
couple motor boat noises. I MADE myself leave him in there until 
the regular time for him to get up on a weekday. I went in to get 
him and he was just kinda sitting at the end of the bed looking 
around. He kept shaking his head "no"...and I kept telling him 
that yes this IS his new bed :o) The best thing??? He DIDN'T cry 
and he DIDN'T get upset :o)
>Nicholas was all excited last night because Devon could no longer 
bang on the walls or open and close his door from over the 
gate...but Devon fixed his wagon :o) When Devon got out of bed he 
walked past his brother's closed door this morning, he gave it one 
big resounding WHOMP and continued on into the family room!!!! 
VERY funny :o)
>Anyway...don't relax those prayers yet...keepem comin :o)
>Love, 
>Penny...loving and devoted wife to Joe, the best husband in the 
world...mom to Nick (14 yrs old...lover of Dragons, Turtles, Yu Gi 
Oh, RollerCoasters, Chocolate Icecream with Ovaltine sprinkles, 
Devon (9 yrs...lover of Barney, Blue, Bear in the Big Blue House, 
Elmo, Stuart Little, Teletubbies and food in general...Full 
trisomy 13 w/balanced translocation 5 and 13) , and Trooper the 
Wonder Dog...our 6 or 7 year old male yellow lab adopted from FL 
Lab Rescue 12/13/02 :o)
>Please visit the webpage my wonderful friend Karen made for me on 
our trisomy listserv at...
>http://www.trisomyonline.org/victor.htm 
>AND...Devon's moment of glory in Exceptional Parent Magazine...
>http://www.eparent.com/familiarfaces/ffaces_4_01.htm
>AND...see our 3 handsome boys on FL Lab Rescue's website at:
>http://www.labradorrescue.net/success/index.html
>AND one more now :o) http://www.healingpowerofprayer.com/album.htm
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line
>
>
 

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                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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