[tri-med] Re: Devon and Diffuse Osteoporosis

{news story that I'd heard several months ago about long term reflux medication 
users being at a greater risk for osteoporosis.}

I think I heard that too.  Nicholas had a fundo after being on Prilosec for 
only a few months and has never taken a reflux med since the surgery.  Also, I 
had his neurologist look into his seizure meds as a cause, but she consulted a 
pediatric neurologist that specializes in this area and looked at Nick's case 
and said none of the seizure meds would have caused it either.

Dr. Carey consulted a doctor in Utah about his fractures and he thought it was 
from being non-ambulatory, but I think it has more to do with his syndrome.  
Nick's bones are extremely thin and porous.  I've asked other parents with 
older T-13's and their children have fractured also, but usually the 
arm/shoulder areas.  I don't know of any other T-13 that has fractured as much 
as Nicholas, but they could be out there.    

Jayne - mom to Nicholas - T13 - 13 years old
Hudson IL

Worry looks around, Sorry looks back, Faith looks up..'  
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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