[tri-med] Re: Decision for Baby Luke

I don't know if anybody watched ER last night (unfortunately I got hooked on 
it again last year!), but most hospitals have the same attitude that was 
mentioned.  "Don't do anything extraordinary or groundbreaking, just try to 
get as many patients through without killing them."  It's a shame.  Notice 
that the hospitals who do decide to be extraordinary are the ones that get 
the donations and notoriety.  Unfortunately malpractice suits have put a 
damper on stuff like that.  It's a shame...

Jennifer, mom to Arwen, 6; Elanor (t18), 4; caregiver to Joe (cerebral palsy 
& spastic displaysia), 25 & Eric, 18; and wife to Andrew

----- Original Message ----- 
From: "Debbie" <claire@xxxxxxxxxxxx>
To: <tri-med@xxxxxxxxxxxxx>
Sent: Friday, October 22, 2004 9:48 AM
Subject: [tri-med] Re: Decision for Baby Luke


> Nan:
> I am always amazed at how one person can make all the difference... esp in
> the hospital!
> We've had drs who won't do a thing for Claire, and just go by the
> fundamentals, then we have drs and techs who will go above and beyond and
> try something that could work... I love that!
> When they say your child is dying, why not try something new, esp if it is
> something so simple and can only help them!!
> You know there's a story there, but I won't bore you with the details.
> (stepping down from soap box)
> Debbie, mom to Baby Claire (full T18 and 19 months old)
> http://www.debbwebb.com/Claire/
>
>
>
>
> At 11:22 AM 10/22/2004, you wrote:
>
>>In a message dated 10/22/2004 7:04:39 AM, jfwolpert2@xxxxxxxxxxx writes:
>>
>><< this is what we have had set up for kam.  everything can be done short 
>>of
>>
>>putting her on a vent. >>
>>
>>Dom had to be reintubated after his back surgery. The doc had told me he
>>would probably be pretty much out of it for a day or so after his surgery.
>>But But this RT made Dom his personal
>>project and was in there with him every 15 minutes that day, pounding his
>>back
>>(very carefully), sitting him up, making him cough, making him breathe in
>>the face
>>mask, and by the end of the day, he no longer needed the vent. Our kids do
>>stuff different and I will always thank God for sending the angel RT that 
>>day
>>who recognized what was needed and just did it.
>>Nan-mom to Dom, 21, tri 18 mosaic and bipolar; and Ali, 21, autism, TS, 
>>ADHD
>>                   Building ___ooOOoo__ Rainbows
>>                        www.trisomyonline.org
>>                   Families Helping Families On-line
>
>
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line
>
> 


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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