[tri-med] Re: Decision for Baby Luke

Nan:
I am always amazed at how one person can make all the difference... esp in 
the hospital!
We've had drs who won't do a thing for Claire, and just go by the 
fundamentals, then we have drs and techs who will go above and beyond and 
try something that could work... I love that!
When they say your child is dying, why not try something new, esp if it is 
something so simple and can only help them!!
You know there's a story there, but I won't bore you with the details.
(stepping down from soap box)
Debbie, mom to Baby Claire (full T18 and 19 months old)
http://www.debbwebb.com/Claire/




At 11:22 AM 10/22/2004, you wrote:

>In a message dated 10/22/2004 7:04:39 AM, jfwolpert2@xxxxxxxxxxx writes:
>
><< this is what we have had set up for kam.  everything can be done short of
>
>putting her on a vent. >>
>
>Dom had to be reintubated after his back surgery. The doc had told me he
>would probably be pretty much out of it for a day or so after his surgery. 
>But But this RT made Dom his personal
>project and was in there with him every 15 minutes that day, pounding his 
>back
>(very carefully), sitting him up, making him cough, making him breathe in 
>the face
>mask, and by the end of the day, he no longer needed the vent. Our kids do
>stuff different and I will always thank God for sending the angel RT that day
>who recognized what was needed and just did it.
>Nan-mom to Dom, 21, tri 18 mosaic and bipolar; and Ali, 21, autism, TS, ADHD
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

Other related posts: