[tri-med] Re: Costello syndrome

You're welcome!  They have pics on their homepage, and it reminded me of 
conference.  I wish we could go this year, it was such a great experience. 
Oh well, maybe next year!

Jennifer, mom to Arwen, 7; Elanor (t18), 5; caregiver to Joe (cerebral palsy 
& spastic displaysia), 26 & Eric (cerebral palsy & seizure disorder), 19; 
and wife to Andrew; Boise, Idaho
----- Original Message ----- 
From: <verheyen@xxxxxxxxxxx>
To: <tri-med@xxxxxxxxxxxxx>
Sent: Wednesday, June 29, 2005 10:26 AM
Subject: [tri-med] Re: Costello syndrome


> Thank you so much Jennifer for the website.  I sent it off to my friend 
> who is in contact with them.  Boy, you girls and guys are good at 
> helping...and FAST too.  I hope they find a group like we all have 
> here...fun,loving,caring and very supportive of each other.  Thanks I know 
> I don't write much but I read every email and have learned alot from 
> everyone.  The knowledge that is shared on this support group is awesome. 
> I have only had the honor of meeting four families but feel like I know 
> most of you.  You are all awesome and I talk about all of you all the time 
> to my family and friends.  Thanks for everything.....
> Tracy mom to Cody (Trisomy 9)
> -------------- Original message -------------- 
>
>> I found a website for the Costello Syndrome support group. It is
>> http://www.costellokids.co.uk/ . It looks like there is quite a bit of 
>> info
>> and contacts for parents. I hope they can find the help they need.
>>
>> Jennifer, mom to Arwen, 7; Elanor (t18), 5; caregiver to Joe (cerebral 
>> palsy
>> & spastic displaysia), 26 & Eric (cerebral palsy & seizure disorder), 19;
>> and wife to Andrew; Boise, Idaho
>>
>> ----- Original Message ----- 
>> From:
>> To: "Trisomy"
>> Sent: Wednesday, June 29, 2005 6:28 AM
>> Subject: (no subject)
>>
>>
>> > Good morning has anyone ever heard of "Costello Syndrome"?
>> > Cody's P.P.I. teacher has a friend that has a grandson who was born two
>> > months premature and they are saying he has this syndrome. They have
>> > tried to find info on the net but are having a hard time finding any
>> > information. Thank you in advance for any input from all of you 
>> > wonderful
>> > and knowledgeable parents.
>> > Tracy mom to Cody (Trisomy 9)
>> > Building ___ooOOoo__ Rainbows
>> > www.trisomyonline.org
>> > Families Helping Families On-line
>> >
>> >
>>
>>
>> Building ___ooOOoo__ Rainbows
>> www.trisomyonline.org
>> Families Helping Families On-line
>>
>
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line
>
> 


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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